We went again to the Chemo Hut and got 2 more bags installed, lol. Also got my prescription of Lorazapan refilled. It took quite a while to do and while it is helping I still look and feel like I need several more to get back caught up.
We ended up beside a guy and his wife (breast cancer) and I kept looking at him. Finally I said I thought I knew him, turns out I did. 15 years ago I delivered to where he worked at 600 Sulpher Springs Road. Small world. Didn't remember his name but I never forget a face. We chatted on and off all day long, the times I was awake. This was her second dose of Chemo and so far she has been hospitalized twice. Once for her port which she no longer has and once for dehydration. They've had a rough go at it so far. I'd like to go back Friday but with the coming weather I'll shoot for next week.
I'm broke out tonight from something, but not sure what. Been a bit sleepy all day and draggy. Maybe from staying up coughing all night last night. More Oregano came up in my saliva and I still taste and feel more left. Tomorrow I sleep late. Tonight was change patch time again. I can't wait until I can get off these patches.
Lots of sneezing going on. Denise dressed my neck tonight and the three lesions in my neck are healing up. maybe this means that the effects of last weeks radiation is wearing off. I tested Mt Dew last night unsuccessfully and tonight with a little more success. That will be a definite test of how it's going, of course I will need to use fresh.
This morning I used 15 mg of Morphine prior to eating breakfast but tonight I used nothing for supper. A bit more painful than with, but not all that much painful. I'm not about to say turning the corner yet, last time I done that I jinxed myself, lol.
The thoughts and worries of did they get the cancer in the lymph node out still hunts me. Perhaps as I feel better I will not worry as much.
Wednesday, January 27, 2010
Tuesday, January 26, 2010
1-26-10
Here we are not quite a week out of Radiation. Inside, my throat is still swelling and outside now 3 places have became lesions on the right side. No lesions on the left side so far. The pain is steady but seems somewhat to be decreasing in some ways. I stay sick feeling at my stomach and when I eat I get sicker, but never throw up. Instead, the feeling subsides after a few minutes when I eat. there is still the horrid taste in my mouth and I'm guess that it is the Oregano Denise sprinkled on last nights food. The swelling inside has caused
a refereed pain in my left ear, more discomfort than pain actually. That is weird since the tumor was on and caused pain in the right ear, and much more intense.
Denise got my metaprol filled and my Miracle Mouth Wash. My BP stays good but my heart rate gets a bit out of hand. The Lorazapan seems to curb one of the other weird side effects, my nerves seems to go out of whack and I begin to shake, muscles eventually twitch snd it feels like I'm going to burst inside. This came along with my right foot towards the end feels swelled and numb. the other foot just tingles like it is in a deep sleep as does both my hands. This started after the last Chemo and it still continues. No pain though.
I woke up at 5am this morning, brushed my teeth and began prepping the bathroom for a bath? I sat down and answered email and then it hit me... where was I going? lol. So I went back to bed and slept until 8am. We will mark that down as a brain fart.
Me, William, and Charlie all went for breakfast this morning. That was a first that I remember and very enjoyable. Then I took off to town, lol. Yea, I'm not suppose to drive yet but I just had to. I took some pictures and placed Charlie and mom's store online at Craigslist.
Tomorrow we go back for another drink, lol. I will ask for 2 bags again tomorrow. I will also ask for some more Lorazapan. Maybe soon it will get better. It seems to be the only thing that curbs those spells without knocking me out or drugging me out.
I stayed tired today, even took a brief nap today. Other than that I've rested and played on the computer.
a refereed pain in my left ear, more discomfort than pain actually. That is weird since the tumor was on and caused pain in the right ear, and much more intense.
Denise got my metaprol filled and my Miracle Mouth Wash. My BP stays good but my heart rate gets a bit out of hand. The Lorazapan seems to curb one of the other weird side effects, my nerves seems to go out of whack and I begin to shake, muscles eventually twitch snd it feels like I'm going to burst inside. This came along with my right foot towards the end feels swelled and numb. the other foot just tingles like it is in a deep sleep as does both my hands. This started after the last Chemo and it still continues. No pain though.
I woke up at 5am this morning, brushed my teeth and began prepping the bathroom for a bath? I sat down and answered email and then it hit me... where was I going? lol. So I went back to bed and slept until 8am. We will mark that down as a brain fart.
Me, William, and Charlie all went for breakfast this morning. That was a first that I remember and very enjoyable. Then I took off to town, lol. Yea, I'm not suppose to drive yet but I just had to. I took some pictures and placed Charlie and mom's store online at Craigslist.
Tomorrow we go back for another drink, lol. I will ask for 2 bags again tomorrow. I will also ask for some more Lorazapan. Maybe soon it will get better. It seems to be the only thing that curbs those spells without knocking me out or drugging me out.
I stayed tired today, even took a brief nap today. Other than that I've rested and played on the computer.
Monday, January 25, 2010
1-25-10
Charlie and I headed out to UT today for a drink, lol. I learned something today though... call Ruth first. The ladies still accommodated us even though I had not called ahead, my bad. Er got there about 8am and we were brought back about 8:30am, if had I have called before it would have been faster. Weather permitting we are going back Wednesday. I plan on doing this for a few weeks until I can get back online. I'm back up to 190.5 tonight!. They gave me 2 bags of fluids plus something for my stomach, I declined the Lorazapan. I am however going to ask him for some pills in these though. I get these shakes and twitches and a weird feeling inside, like I'm breaking out of something, sorta of nervous and they help that. It doesn't always happen but occasionally it does. That is the only one of all this stuff I'd like to keep. I'm not sure if it is muscles or nerves, but they are all pretty much involuntary. These attacks have lessened somewhat but still continue. I've also developed referred pain to my left ear... strange?
We stopped back at Shoneys where I bought lunch, something that was suppose to have been done last Thursday. Charlie wasn't fond of me buying it, but I talked him into it. Man do I feel much better but I am running out of energy. I know it's only a temporary energy until I get my body straightened out. Most of my fatigue came from running Annie to Wal-Mart for a laptop, she didn't find the one she wanted and if it had been there, it wasn't worth it. We came home and got her a decent one which she said she thought was too much. So we arranged a payment plan at her insistence. No money will be exchanged, but here is what will. That she pursue her dream (currently to be a nurse) but whatever she so chooses as long as she always applies herself. That she set no limits or boundaries on her abilities. The interest is that she be a good and decent person, no matter what she selects. That she makes a positive difference in the world and remains independent upon other while knowing that sometimes she must be dependent and that she allows those who need to be dependent upon her do so. That she never stops chasing her dreams, while keeping her feet firmly planted.
Dad fell in the shower today and messed himself up. His skin was too thin to sew up son they lapped it over and bandaged it. He didn't break any bones though. At 86, I was worried.
We saw the lady from the Radiation room. Charlie spotter her and she came to where I was. He told her that I had been very worried about her since she had taken a break. I think her name starts with "D", but not sure. If I understood her correctly she said that the amount of weight she has lost and the disfigurement on the left side of her face meant that they would have to make another mask... her's no longer fits. She said they were looking into an alternate therapy. This lady smiles every time you see her and has been so helpful to inform all of us what to use like biotene. Bless her heart, she is always alone. She is such a beam of brightness yet in a very darkened time. I would like to ask that those of you that read this blog say a prayer for her every night when you go to bed. P.U.S.H. Pray Until Something Happens.
Annie and me went computer shopping tonight, came back, and ordered online, lol. She wants to be a nurse. Despite the weather, it has been a wonderful day. I don't think she expected to get one this nice, she was saving her money to get one and this one was a tad outta her reach, it ain't now, lol.
Charlie talked like we might go too Shoneys again tomorrow. A little Morphine to swallow and I'm all for it, lol. That will make up for the herb or whatever that was Denise though would look and taste good sprinkled over the mack & meat. They quickly filled the holes inside my throat and ended that meal. During these treatments, presentation has nothing to do with eating, lol. It all tastes funny or bad but the trick is not making it hurt.
We stopped back at Shoneys where I bought lunch, something that was suppose to have been done last Thursday. Charlie wasn't fond of me buying it, but I talked him into it. Man do I feel much better but I am running out of energy. I know it's only a temporary energy until I get my body straightened out. Most of my fatigue came from running Annie to Wal-Mart for a laptop, she didn't find the one she wanted and if it had been there, it wasn't worth it. We came home and got her a decent one which she said she thought was too much. So we arranged a payment plan at her insistence. No money will be exchanged, but here is what will. That she pursue her dream (currently to be a nurse) but whatever she so chooses as long as she always applies herself. That she set no limits or boundaries on her abilities. The interest is that she be a good and decent person, no matter what she selects. That she makes a positive difference in the world and remains independent upon other while knowing that sometimes she must be dependent and that she allows those who need to be dependent upon her do so. That she never stops chasing her dreams, while keeping her feet firmly planted.
Dad fell in the shower today and messed himself up. His skin was too thin to sew up son they lapped it over and bandaged it. He didn't break any bones though. At 86, I was worried.
We saw the lady from the Radiation room. Charlie spotter her and she came to where I was. He told her that I had been very worried about her since she had taken a break. I think her name starts with "D", but not sure. If I understood her correctly she said that the amount of weight she has lost and the disfigurement on the left side of her face meant that they would have to make another mask... her's no longer fits. She said they were looking into an alternate therapy. This lady smiles every time you see her and has been so helpful to inform all of us what to use like biotene. Bless her heart, she is always alone. She is such a beam of brightness yet in a very darkened time. I would like to ask that those of you that read this blog say a prayer for her every night when you go to bed. P.U.S.H. Pray Until Something Happens.
Annie and me went computer shopping tonight, came back, and ordered online, lol. She wants to be a nurse. Despite the weather, it has been a wonderful day. I don't think she expected to get one this nice, she was saving her money to get one and this one was a tad outta her reach, it ain't now, lol.
Charlie talked like we might go too Shoneys again tomorrow. A little Morphine to swallow and I'm all for it, lol. That will make up for the herb or whatever that was Denise though would look and taste good sprinkled over the mack & meat. They quickly filled the holes inside my throat and ended that meal. During these treatments, presentation has nothing to do with eating, lol. It all tastes funny or bad but the trick is not making it hurt.
Sunday, January 24, 2010
1-24-2010
Funny, I thought when the treatment were over it would start to get better. I knew that the radiation effects would take place this week from last week and that my throat would be bad. I also knew that what damage has been done would not be undone overnight, I just didn't think it would continue to be this hard.
Charlie and me are going to UT tomorrow and get some more IV fluids, I'm hitting them up for a couple of bags, lol. They did say I could come when I needed to, so I will if Charlie can take me go there at least twice this week, maybe three times. I weighed tonight and my weight is 187 lbs. That is about what I weighed in High School over 30 years ago.
It's funny, the pain killers constipate and dehydrate me yet without them the soreness in my throat will not allow me to eat. I even tried Ensure and the Sodium content is like drinking fire. I've drank more Pedialite and that seems to help somewhat, just not enough. Go figure, lol. I can set up for a while but I'm still too weak to stay up for long periods. My goal tonight is to have enough strength to walk to the truck tomorrow and to walk into the Chemo Hut on my own power. While that may not sound like much right now it looks like a mountain. So that I could eat breakfast today I gave in for the first time since Friday and took 1/2 a dose of liquid Morphine and tonight I'm doing the same so I can eat. I've managed to get almost 2 eggs and most of a piece of sausage and part of 2 pieces of toast along with a few bites of Oatmeal (they get stuck in the holes in my throat), a pudding, and I guess that is all. I thought there was something else but I guess not. I am about to attempt a crescent roll, piece of hamburger meat with mushroom gravy and mashed potatoes. Think I got full just typing that in, lol.
I should have read more on the blogs, what few I found on this and asked more questions up front. While I am glad I have fought, if this were placed in front of me and they told me I would have to redo it, I'm not too sure that I could or even would. The only solstice I've had today was mom bringing me in a BPO to do that I asked her for. Usually I'd have them done in an hour or two, this took a few hours. It sure was fun to do something other than lay and set all day. Sometimes I wish I could amuse myself with TV but other than a few shows I can't. I have looked through a seed catalog even though I know I can't do my garden this year. I've almost got me an order up and if nothing else I'll freeze them and use them next year... or talk Denise and Megan into growing them, lol. Sometime during the summer I should be able to work in it and if nothing else watch it grow. Then again, I'll be home alone during the day and I can sneak out and play in it, lol.
Added:
I got about 1/4th of it eat and I am about to bust.
Charlie and me are going to UT tomorrow and get some more IV fluids, I'm hitting them up for a couple of bags, lol. They did say I could come when I needed to, so I will if Charlie can take me go there at least twice this week, maybe three times. I weighed tonight and my weight is 187 lbs. That is about what I weighed in High School over 30 years ago.
It's funny, the pain killers constipate and dehydrate me yet without them the soreness in my throat will not allow me to eat. I even tried Ensure and the Sodium content is like drinking fire. I've drank more Pedialite and that seems to help somewhat, just not enough. Go figure, lol. I can set up for a while but I'm still too weak to stay up for long periods. My goal tonight is to have enough strength to walk to the truck tomorrow and to walk into the Chemo Hut on my own power. While that may not sound like much right now it looks like a mountain. So that I could eat breakfast today I gave in for the first time since Friday and took 1/2 a dose of liquid Morphine and tonight I'm doing the same so I can eat. I've managed to get almost 2 eggs and most of a piece of sausage and part of 2 pieces of toast along with a few bites of Oatmeal (they get stuck in the holes in my throat), a pudding, and I guess that is all. I thought there was something else but I guess not. I am about to attempt a crescent roll, piece of hamburger meat with mushroom gravy and mashed potatoes. Think I got full just typing that in, lol.
I should have read more on the blogs, what few I found on this and asked more questions up front. While I am glad I have fought, if this were placed in front of me and they told me I would have to redo it, I'm not too sure that I could or even would. The only solstice I've had today was mom bringing me in a BPO to do that I asked her for. Usually I'd have them done in an hour or two, this took a few hours. It sure was fun to do something other than lay and set all day. Sometimes I wish I could amuse myself with TV but other than a few shows I can't. I have looked through a seed catalog even though I know I can't do my garden this year. I've almost got me an order up and if nothing else I'll freeze them and use them next year... or talk Denise and Megan into growing them, lol. Sometime during the summer I should be able to work in it and if nothing else watch it grow. Then again, I'll be home alone during the day and I can sneak out and play in it, lol.
Added:
I got about 1/4th of it eat and I am about to bust.
Saturday, January 23, 2010
My Mask
Megan took pictures of my Mask she posted on her blog. Remember that when this cast was molded that I was 231 lbs, now I am 190 lbs. And the way that you are positioned on the flat table with the head support that it is much tighter than this looks now.
http://lightnight99.blogspot.com/
Since these blogs change fast I'll post a few pictures up here. When you finish you have the option to keep your mask... I kept mine and I'm going to mount it on the wall. I think I've earned it.
http://lightnight99.blogspot.com/
Since these blogs change fast I'll post a few pictures up here. When you finish you have the option to keep your mask... I kept mine and I'm going to mount it on the wall. I think I've earned it.
Other Throat Radiation sites
Here are a few I ran across tonight.
http://www.fashion-era.com/Cancer_Diary.htm
http://www.webwhispers.org/Library/Radiation.asp
http://www.cancer-throat.com/
http://oralcancerfoundation.org/about/brianhill.htm
http://www.docstoc.com/docs/14211716/What-youre-facing-with-Squamous-Cell-Carcinoma
http://www.fashion-era.com/Cancer_Diary.htm
http://www.webwhispers.org/Library/Radiation.asp
http://www.cancer-throat.com/
http://oralcancerfoundation.org/about/brianhill.htm
http://www.docstoc.com/docs/14211716/What-youre-facing-with-Squamous-Cell-Carcinoma
Dehydration
Since my recent fall I guess I've slept enough or passed out enough for two people. Actually through this whole thing I've slept a lot. Tonight I couldn't sleep a lot so I read up a researched some of what was diagnosed that led to the last two days events as well as the last week or so. I found a lot of info out there but perhaps this page, even though there are a lot of dead links on it was the most informative written in layman's terms. This has helped me to understand what went wrong, or should I say, where I went wrong. Maybe it will help someone avoid what I done.
http://www.causeof.org/dehydrate.htm#PreventionChronic
This is why it is important to go in and get hydrated in the Chemo Hut a lot more frequently than I did. Notice the constipation is also mentioned as well as the losing consciousness, weakness, and dizziness.
http://www.causeof.org/dehydrate.htm#PreventionChronic
This is why it is important to go in and get hydrated in the Chemo Hut a lot more frequently than I did. Notice the constipation is also mentioned as well as the losing consciousness, weakness, and dizziness.
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