Beautiful day today. I managed to actually stay up this morning and get some playing done. My throat is well enough to once again sleep in the bed, now if I could get rid of this Sling Blade voice I'd be set. I done a stupid move again yesterday thinking I could cut one the pills for the neuropathy and I'm still paying for it today. Live and learn I guess. I added one today and it seems to be working out all but tonight.
I kept active with the beautiful weather but it doesn't look like I did. Washed dad's truck then backed it back into the garage, it still smells inside like dad. Fixed the battery cables on Big Ugly and put the back spear on the tractor. Moved all the old tires into the garage around back and covered them up. Cleaned up the yard. Mom called and we all met at Cracker Barrel and had lunch. Visited with Misty and the babies. It was just a perfect day. I wished I could have gotten more done but I got in trouble for doing that, lol. I haven't taken any pain meds today which is great. Now if I could just get rid of the patch.
There is a hissing in my right ear, sounds loud. I had it once today. Rathfoot said something about the pressure caused it and it should leave as the swelling goes away, if I remember correctly. There is a constant ringing and referred pain occasionally but the hissing only comes every once and a great while. The first time I heard it I thought Denise had a flat tire, it's that loud.
My CTCL is running wild and wide spread. I wore short sleeves today and really didn't want to get out into the public like that. While the Chemo stopped one cancer it seems to have allowed the other to run free. We meet with Green next month and plan to ask about using the NBUVB, Panella says I can provided I shield my neck. I still want to hear it from Green though.
I have went back to using the Miracle Mouth wash before bedtime. It seems to keep my mouth from drying out as fast but I still keep a bottle of water at bedside. I wake up every so often with a dry mouth. We are talking one where your tongue actually sticks to the roof of your mouth and extremely painful. My Saliva glands seem to be trying to work again somewhat. I also keep the biotene spray near at all times. Tonight the referred pain is in the left ear, the side that Rathfoot said was the worse and oddly enough, the opposite side the tumor was on.
Wednesday, March 24, 2010
Tuesday, March 23, 2010
03-23-2010
Had my appointment with Rathfoot. Sodas were not the answer to this one like with scar tissue. All that led to was pain killers afterward, lol. I think my brain stuck in stupid gear this time.
Rathfoot said that my acid reflux was worse and that I needed to take a pill in the morning and afternoon. He scoped my throat and said that it was in worse shape than right after my radiation. Between the acid reflux, talking a lot, and stress, it has taken its toll. He said that it looked like a bunch of "water balloons" in there. He said that even my Epiglottis was swelled too, which explain the choking. I wonder about the Banana Popsicles, they offer some relief, yet afterward a reflux. He put me on 20mg of Predisome twice a day and Dyfluken, one pill ever four days. I have no idea what I just typed, Denise told me what they were and what was said, lol. I just know I hurt and he gave me some meds. He said we may have to stretch my throat in the future. There is not a lot that can be done for the stress but the talking and reflux I can do something about. This may also be my fatigue.
Rathfoot said that my acid reflux was worse and that I needed to take a pill in the morning and afternoon. He scoped my throat and said that it was in worse shape than right after my radiation. Between the acid reflux, talking a lot, and stress, it has taken its toll. He said that it looked like a bunch of "water balloons" in there. He said that even my Epiglottis was swelled too, which explain the choking. I wonder about the Banana Popsicles, they offer some relief, yet afterward a reflux. He put me on 20mg of Predisome twice a day and Dyfluken, one pill ever four days. I have no idea what I just typed, Denise told me what they were and what was said, lol. I just know I hurt and he gave me some meds. He said we may have to stretch my throat in the future. There is not a lot that can be done for the stress but the talking and reflux I can do something about. This may also be my fatigue.
Monday, March 22, 2010
03-22-2010
I slept late today, about 10am. I went to Boyd and he is going to talk with Green about taking out the teeth I lost. I came home and goofed off a bit the hit the couch about 4pm, slept til 8pm, now I'm sleepy again.
The coke I drunk seemed to help a bit, I'll still sleep in the chair again tonight.
We see Rathfoot on.
The coke I drunk seemed to help a bit, I'll still sleep in the chair again tonight.
We see Rathfoot on.
Sunday, March 21, 2010
03-21-2010 night
I woke up this morning about 6:30, went back to sleep and slept until 8:30. I had a pretty decent voice this morning. The other post was actually more like 03-20 but I dated it because I wasn't paying attention, lol. Last night was very similar to that night...I slept in my chair. I walked what I considered normal because I polished my regular shoes and wore them to dad's burial. A lot of pain still after my ham episode but the bleeding has subsided. My saliva glands still aren't working properly. My throat is still swelled and I still sound like Sling Blade, lol.
I have the whistling in my right ear, like air being bet out. It doesn't hurt but can be distracting. Dad would have been proud of his funeral today and all those that took part in it. Thank you to all the ones that took part in it.
Denise is going to call Rathfoot tomorrow and see if he can see me early. Tonight, I sleep again in my chair.
I have the whistling in my right ear, like air being bet out. It doesn't hurt but can be distracting. Dad would have been proud of his funeral today and all those that took part in it. Thank you to all the ones that took part in it.
Denise is going to call Rathfoot tomorrow and see if he can see me early. Tonight, I sleep again in my chair.
03-21-2010
Well, I'm setting up tonight. It's 3:43am and I am tired but when I lay down or start to sleep, I can't get air. It feels like my throat has closed off and I simply quit breathing. I have some pretty weird dreams or something while this is happening. Then I awake and gasp for air. My feet are completely numb, not like numb from the neuropathy, along with my hands and chest pain. I just can't get enough air. I can her the flap thing sound like cards in a bicycle spoke. I even lay down and just simply stop breathing.
I kept it in control at dad's funeral. I seen people I haven't saw in quite a while. I figure I'll try it again. No pain though except for the dryness. I read somewhere about soda helping, this is my third glass of Pepsi. It burns terrible but at least if might just work. This morning I woke up and couldn't talk but after brushing me teeth and hacking and gargling, I regained my voice back to an extent.
I kept it in control at dad's funeral. I seen people I haven't saw in quite a while. I figure I'll try it again. No pain though except for the dryness. I read somewhere about soda helping, this is my third glass of Pepsi. It burns terrible but at least if might just work. This morning I woke up and couldn't talk but after brushing me teeth and hacking and gargling, I regained my voice back to an extent.
Friday, March 19, 2010
03-19-2010
My visit with Panella went ok today. He just prescribed more Morphine.
Big thing is dad. Friends will be received Saturday from 11-8pm Family from 11am-8pm. The funeral will be Sunday at 2pm at Farrar Funeral Home in White Pine. Sorry, I was exhausted last night.
Big thing is dad. Friends will be received Saturday from 11-8pm Family from 11am-8pm. The funeral will be Sunday at 2pm at Farrar Funeral Home in White Pine. Sorry, I was exhausted last night.
Wednesday, March 17, 2010
03-17-2010
I stayed up working on the data for mom until about 3:45am and was back up a little before 7am. The pain wasn't that bad but eating is back where it was, hard to swallow and some goes up the nose and some in the airways and some where it should. I thought I would be past this by now. I stayed at the office until 12:30 when I came home, the pain level was too high. I took some 7.5 mg Loratabs with me and after I had to use the second one, I thought it was tine to go, I didn't get all of it done.
I used Lidocaine, forgot about that, to ease it off. It did some but very, very little. The swelling is slowly impairing my breathing and you can hear the flap moving are a gurgle or wheeze when I breathe. The referred pain is back in just the left ear so far. I used some oxygen and it me from feeling like I am smothering for a little while. I will update if anything changes.
I have an update on dad on his page, it's not good.
Breathing is extremely labored tonight and so far I have done 2, Loratabs with nothing working. With 2 pain pills, the pain is still at a level 9. I'm not sure just why. I will sleep in my chair tonight. Everything else is fine though, even the outside is tender. Sun???
I used Lidocaine, forgot about that, to ease it off. It did some but very, very little. The swelling is slowly impairing my breathing and you can hear the flap moving are a gurgle or wheeze when I breathe. The referred pain is back in just the left ear so far. I used some oxygen and it me from feeling like I am smothering for a little while. I will update if anything changes.
I have an update on dad on his page, it's not good.
Breathing is extremely labored tonight and so far I have done 2, Loratabs with nothing working. With 2 pain pills, the pain is still at a level 9. I'm not sure just why. I will sleep in my chair tonight. Everything else is fine though, even the outside is tender. Sun???
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