Ok, it's actually now officially 11-12-10 and I'm still up. Eating none the less. Prednisone or bad habits? I goofed off today, no leaves, no bush hogging, just pure trouble. Me and Bill went after a 65 ragtop (stressing that word) Corvair. We went to a lot of trouble to hide it, but then she asked, and my big mouth opened. I would not make a good politician, lol.
Not as tight in my breathing tonight, but still hard to do. Possibly the laughing while spewing Mt Dew coming out of my nose may have helped. Sorry about that Bill, if that had been me who had the accident I'd have laughed anyway. The look on his face when the bungee cord snapped, just too much.
The CTCL is raging lately. My foot looks and feel like it has been dipped in acid and more plaques coming out on the body on the legs and arms. I need to go back to taking the herbs and maybe do some NBUVB treatments, something I'd rather not do with my neck. Maybe a shield? Beats Interferon though.
Tomorrow maybe blow leaves off the roof, provided the neuropathy backs off. I tried that about two days ago, didn't work too well. I'm assuming the only way to know one's limits is by finding them. God knows I've done enough of that in my life, lol.
Thursday, November 11, 2010
Tuesday, November 9, 2010
I Survived...Beyond and Back - update
I got an update with the date it will air on and a lot of people had asked when it comes on. Below is a copy that I got today from Lauren. I tell you, this has been a nice company to have the honor of working with.
“Dear Anthony,
Thank you for sharing your story for our series "I Survived...Beyond and Back." Your episode will premiere on BIO on Sunday, January 9 at 10 PM ET/9PM CT/8PM MT/7PM PT. Please check your local listings and at www.bio.com as there are often last minute scheduling changes that are out of our control. Often people ask where BIO is in their area, and my suggestion is to check on http://www.tvguide.com/Listings/ where you can input your zip code and your cable provider.
"I Survived... Beyond and Back” is a follow up series to “I Survived…,” which is in its 6th season and also airs on BIO Channel. Some of our survivors from “I Survived…” have been featured on local and national television, radio, print and the web, so please let us know if you are amenable to press opportunities. We will be doing local press outreach in your market. If there is a specific paper, local television or radio station or outlet you would like us to reach out to about the premiere of your episodes, please let us know. If you've done press in the past related to your story, please also let us know and we will follow up with that reporter/outlet to see if they are interested in catching up with you and helping to promote your episode's airing.
I cannot make any promises but if you have a website or a book or something related to your story of survival please pass that information along to us and we will do our best to ask our website if they can include something on our site.
At BIO we prove that the truth about people is always more entertaining than fiction, so thank you for sharing your true story with us and our viewers!
Best,
Laurén”
“Dear Anthony,
Thank you for sharing your story for our series "I Survived...Beyond and Back." Your episode will premiere on BIO on Sunday, January 9 at 10 PM ET/9PM CT/8PM MT/7PM PT. Please check your local listings and at www.bio.com as there are often last minute scheduling changes that are out of our control. Often people ask where BIO is in their area, and my suggestion is to check on http://www.tvguide.com/Listings/ where you can input your zip code and your cable provider.
"I Survived... Beyond and Back” is a follow up series to “I Survived…,” which is in its 6th season and also airs on BIO Channel. Some of our survivors from “I Survived…” have been featured on local and national television, radio, print and the web, so please let us know if you are amenable to press opportunities. We will be doing local press outreach in your market. If there is a specific paper, local television or radio station or outlet you would like us to reach out to about the premiere of your episodes, please let us know. If you've done press in the past related to your story, please also let us know and we will follow up with that reporter/outlet to see if they are interested in catching up with you and helping to promote your episode's airing.
I cannot make any promises but if you have a website or a book or something related to your story of survival please pass that information along to us and we will do our best to ask our website if they can include something on our site.
At BIO we prove that the truth about people is always more entertaining than fiction, so thank you for sharing your true story with us and our viewers!
Best,
Laurén”
11-09-2010 Dr Rathfoot Follow-up
First off, Happy Birthday Josh... number 10. (my oldest grandson).
We went early this morning for a follow-up visit with Dr Rathfoot, a well awaited thing for me. Good news and bad news. Good news- He scoped me and saw no tumor. Bad news- I'm swelled enough that my airflow is restricted so he did not inject the medicine, he wants to wait until I have done 3 months of steroids first. He said that a mold had gotten in and created inflammation. I weighed in at 200lbs! Time to either grow taller or diet.Imagine me after 3 months of steroids. I will probably be able to find work being the "Before" picture, lol.
I've been back at having a hard time breathing, especially at night. Somethings, often times, I awake to not being able to breathe. Three days of bush hogging a field and my reward is three months of steroids. Wonder what working the last few days in leaves will get me, lol. I don't lack much more but I'm going to do mom's too... she just don't know it yet. So once again we learn our limits but how else would one know the limit with testing the limit? We don't.
I will have a special message with info on the TV Show in a separate post.
We went early this morning for a follow-up visit with Dr Rathfoot, a well awaited thing for me. Good news and bad news. Good news- He scoped me and saw no tumor. Bad news- I'm swelled enough that my airflow is restricted so he did not inject the medicine, he wants to wait until I have done 3 months of steroids first. He said that a mold had gotten in and created inflammation. I weighed in at 200lbs! Time to either grow taller or diet.Imagine me after 3 months of steroids. I will probably be able to find work being the "Before" picture, lol.
I've been back at having a hard time breathing, especially at night. Somethings, often times, I awake to not being able to breathe. Three days of bush hogging a field and my reward is three months of steroids. Wonder what working the last few days in leaves will get me, lol. I don't lack much more but I'm going to do mom's too... she just don't know it yet. So once again we learn our limits but how else would one know the limit with testing the limit? We don't.
I will have a special message with info on the TV Show in a separate post.
Sunday, November 7, 2010
11-07-2010
I blew leaves a couple of days ago and still a bit down. I lost most of my voice again, still gone. I also ended up taking some pain meds, not a good thing. Other than that though, I'm doing ok. I'm still trying to come off the Gabapintin (misspelled) but I keep trying. It is hard to sleep at night lately. Part of that is the pain in my knees, shoulders and neck.
I go back to Rathfoot for a follow-up this week. They are suppose to have a machine whee they can inject the inside going through the outside as opposed to surgery. It sounds painful but probably no more painful than the other way... crossing my fingers on that one, lol.
My hair is back thin up front, maybe thinner than it was, but the back is still thick and curly.
I'm still having to watch what I swallow and swallowing itself, but not as bad. I also have to watch for heavily spiced food, especially pepper. At night it feels like a belt is tight around my neck and hard to breathe at times.
I've gained a bit too much weight, so that is the next thing to work on.
I go back to Rathfoot for a follow-up this week. They are suppose to have a machine whee they can inject the inside going through the outside as opposed to surgery. It sounds painful but probably no more painful than the other way... crossing my fingers on that one, lol.
My hair is back thin up front, maybe thinner than it was, but the back is still thick and curly.
I'm still having to watch what I swallow and swallowing itself, but not as bad. I also have to watch for heavily spiced food, especially pepper. At night it feels like a belt is tight around my neck and hard to breathe at times.
I've gained a bit too much weight, so that is the next thing to work on.
Friday, October 29, 2010
10-29-10
We got the garlic planted, even though the soil was wet. I also placed straw down in the chicken house to calm the dust. Not my first choice but it was done anyway.
I'm still weak. Yesterday I got much of nothing done and again today, more of the same. No energy, no strength, no stamina... I am tired. I've still kept on and off the last two days a migraine, but at least it wasn't continual as it has been. I blew blood out of my right side of my nose this morning, maybe that is where the problem is. I'm still taking Kim's advice, allergy pill and Musenix (misspelled) and it has helped. I'm just so tired.
The big part on my finger came loose more today so I went ahead and cut the dead looking part off. Still, all in all, it don't look too bad.
Been watching the banana plant and it is working on having some bananas! Now if the rest would take heed, lol. I can't wait. These will be my first ones after all these years.
I'm still weak. Yesterday I got much of nothing done and again today, more of the same. No energy, no strength, no stamina... I am tired. I've still kept on and off the last two days a migraine, but at least it wasn't continual as it has been. I blew blood out of my right side of my nose this morning, maybe that is where the problem is. I'm still taking Kim's advice, allergy pill and Musenix (misspelled) and it has helped. I'm just so tired.
The big part on my finger came loose more today so I went ahead and cut the dead looking part off. Still, all in all, it don't look too bad.
Been watching the banana plant and it is working on having some bananas! Now if the rest would take heed, lol. I can't wait. These will be my first ones after all these years.
Tuesday, October 26, 2010
10-25-2010
I've slept most all the day, going in and out. Same tonight too, just happen to wake up long enough to long in. I took some left over Bactin Double Strength, something I had taken before. This time though I had a bad reaction to it. I broke out all over and my throat swelled almost closed. I've kept Bendyrl in my system that seems to have helped with it.
The pain in my throat seem to be getting better, I suspect the chewing gum Dentene. So I've stopped that. The migraine backs off with Excedrin Migraine pills. Very weak and when the meds wear off I'm up and wishing that I wasn't. Extreme pain in my head, eyes, shoulders, and neck. Hopefully tomorrow will be a better day.
Kim brought up a good idea, maybe it was all the mowing as weeds had grown as large as the tractor. I still have about 15 acres to go so maybe a mask is in order. So tired.
The pain in my throat seem to be getting better, I suspect the chewing gum Dentene. So I've stopped that. The migraine backs off with Excedrin Migraine pills. Very weak and when the meds wear off I'm up and wishing that I wasn't. Extreme pain in my head, eyes, shoulders, and neck. Hopefully tomorrow will be a better day.
Kim brought up a good idea, maybe it was all the mowing as weeds had grown as large as the tractor. I still have about 15 acres to go so maybe a mask is in order. So tired.
Saturday, October 23, 2010
10-23-2010
Today has been a down day which I'm guessing was overdo. Strange, I have a pain, localized to the point of actually pointing it with a finger in the right side of my larynx. This is the third day of it but by far the most intense. This is the first day though I've had to resort back to pain medicine to relieve the pain. I've bush hogged for two days, Thursday and Friday. Thursday I failed to use sunblock, maybe partly the reason for the swelling feeling around my throat inside. Denise looked at my throat tonight and said she could see the swelling on the right side. This has been the second day as well for a migraine. Then again, sinuses have acted up as well.
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