04- 10- 10102

  We all kept busy but min wasn't a productive one. They.  actually done most of it of it. I will type more in maybe tomorrow.

04-09-2010

  Another beautiful day again. As usual I started this morning out a mute and slowly got it to break up enough to semi speak. My voice was weak today but we got a laugh outta it. At Easy In Snooks said to hollar at Lisa to come ring me up that she was busy. I turned to look at her and smiled and she laughed and said to clap or make a noise or something, she forgot I couldn't yell. We all had a good laugh out of that one.

  I read tonight on Dr Mercola's site something I had forgotten. Curcumin has properties that reduced swelling, so I took a couple of capsules. I'm still careful with those. It was those, before this whole thing started, that I got choked on and exploded the veins in my face and eyes. Still, if they will slow down the swelling tonight it will have been worth it.

   I got my oxygen tank refilled today, not a script but a tank I used at the pet store back when I had it. It helps, maybe just mentally, when I breath it in at night and sometimes during the day when I feel I'm smothering. When the sun is down seems to be when my throat swells the worse. It seems that night is when many things happen. It was about 12 pm in 2005 when I had my heart attack. It was 5am when dad's stroke hit.

  I went visiting yard sales today, or at least 3 of them, mostly I just drove. I ended up having lunch with Denise then stopping by the office to check on and help mom. I ended up in a junkyard with Matt & Misty and ended the day with watching a Tv show, my kind of day. I am worn out. Tonight I hear the hissing in my right ear and I cannot for the life of me remember what Dr Rathfoot said about that.

 I've left off the blood thinners for the last few days until the bleeding stops. Tonight I have taken the Curcumin and Ibuprofen for swelling and breathed oxygen for about five to ten minutes. I have drank ice water and also have the biotene spray ready in case I wake up in the middle of the night with a dry mouth. I may try and sleep in the bed tonight. I usually end up there somehow, lol. Somehow I thought all this junk would be over by now, one way or the other. I probably shouldn't think so much, lol.

04-08-2010

  Just before bedtime...ok, after bedtime, lol. I finally broke and took some pain meds to ease it off enough to sleep. It's been a good day today despite the news, could have been worse and seen worse. There are small pieces of meat, scab... who knows, that comes up occasionally tonight. I believe I have gotten into poison ivy yesterday. I know that some of it isn't the NHL, it's weeping. I'll have to fix that tomorrow. I think its even in my eyes. Tonight, I'll sleep in that chair again. Breathing is easier that way.

  I did order some Graviola I found at Pure Prescriptions. This stuff works wonders, especially with Curcumin and high doses of Vitamin C to know cancer in the head. Now if I can just swallow them when they get here.   

04-08-2010 - Dr. Rathfoot Follow-Up

   I had a follow-up with Dr Rathfoot today, not quite what I expected or wanted to hear. I got to hear the word "rare" once again. A rare side effect from the radiation is that it can damage the cartilage in the voice box area. From what I understood it is hardening or dying from the radiation. He said that my throat was the worse he had saw it, including during the radiation. Due to the infections and swelling I have been bleeding and that is where the blood comes from in the mornings. During the day I keep the blood from collecting but at night, with drinking nothing, it accumulates. In the mornings, except this morning, I am completely mute until I get it broke loose.

  He is getting me set up for Hyperbaric Oxygen Therapy at Saint Mary's Hospital. He said at least 2 weeks, maybe longer. He thinks that it should turn around by then but like us he would like to see a Cat Scan, there is a possibility of a new tumor under all the swelling. Both sides are swelled around the larynx very bad, he explained as he drew the swelled area on a pad that had a picture of the area. I would have to set in a room for about a hour each day which doesn't sound real bad.

    When we meet with Panella I will insist on the Cat Scan to know if this junk is back. I am glad that Rathfoot insists on keeping close tabs on his patients rather than waiting like Panella wanted. If we had done it Panella's way I'd be dead right now. I have completed my "bucket list" with the fridge, the last item to be done. More treatments would have to look awfully good to go any farther than I have already went, and that is doubtful. I know I will not and cannot go through another round like the last time. I kept my promise to Denise and fought and fought hard.

  The neuropathy though today has not been bad, it ha actually backed off a bit. While I think of it, if someone goes through this and notices a band on the fingernails that is also a side effect from the chemo. We learned that today. I don't think it is painful but you have to remember that this is coming from the man that closed his fingers in a door and tried to walk off, lol. It actually looks pretty wild.     

04-07-2010 Evening

I got a little busy today and I know I'll pay tomorrow but I sure did have fun today. I mowed our yard, mom's yard and tilled where the green beans are going. I'll do some other stuff there like Okra and whatever Denise doesn't want in her gardens. I did cheap though. I hooked the rotovator up to the tractors and took it out 5 feet at a time, it may be 6 but we'll say five just to be safe. Fixed the power steering on the tractor, installed a fan in Big Ugly, unloaded the rest of the sand for the grandkids, the Megan and me planted an apple and a cherry tree. Me and Denise carried the wrought iron table and chairs on the back porch.

   I couldn't help but remember so many memories wile doing mom & dad's yard, it took a little longer than it should. I miss him. 

  The vibration of both the tractor and riding lawnmower eased the neuropathy while I was riding but when I got off, another story. I was taking a break with National Geographic called to say they would not be using me this time but maybe next time. I think my voice and health may have played a part in their decision. She said maybe next month. That is really good though as it will allow me time to heal. The show will be called Beyond and Back and should be good. I'll be watching to see if any of my friends are on it, especially Lou.

  Tonight I am again tired. Slowly each day I get a little farther along. I've been getting into trouble for doing yet if I do get back up I must do so attempting. Today has been a no pain med day again. In part to where I remembered the sunblock on my neck the I took my shirt off, rolled it up, and used it as a scarf. It still swelled but not as bad and the pain is lower.

  Tonight has been quiet so far. Last night someone knocked at her door 3 times and then came back here. It was late but I was up fairly late but both were around the same time frame. I really don't think they got what they expected when I walked out with a Carbine rifle, so they decided to move on.  

04-07-2010

  I thought I had posted last night but I see I didn't. It is so weird how this stuff effect the brain.  

I woke up this morning then went right back out...twice, lol. Yesterday they delivered the frige and it did fit through the door with some work. Two different guys plus the owner of the company. They worked hard to get it through.

 I stayed outside all but the time they delivered the fridge. I've started carrying a pad to help me remember what I wanted to do in my pocket. I think it's called Chemo Fog. Why I get the things that should have come in December or earlier I have no idea. One note I have left myself is to wear sunblock on my neck. I burnt it pretty bad yesterday and it swelled and throbbed, and still is this morning. The pain is pretty rough but not enough to warrant pain meds. It is local and isolated so I can ignore that if I am preoccupied.

 My neuropahthy was bad yesterday, and that was remembering to take my pills. I did however have to ride the bike to the hardware while they delivered the fridge because my driveway was block so I now know I can ride no matter how bad it is. The only thing would be my balance. I don't think my ignorance of jumping off the tractor helped any, lol. It felt like 120 volts went through each leg when I landed. I done that several times. There just isn't any easy way to dismount the tractor.

  I woke up this morning with the same film and pain that I do every morning but this time I noticed and watched what I spit up and hacked to get up. It is dried blood and some puss later. I'm not sure what the film in my mouth is but the stuff in my throat that prohibits me from speaking and causes a lot of pain is dried blood. I go to Rathfoot tomorrow and I hope he can see what is going on. Not that I really like a scope up my nose and down my throat but he numbs it, and I'm getting use to it. I keep remembering what Lone Wolf told Denise  many years ago, "Never say never rather say I'd rather not, we may just have to one day do what we said we would never do".

  I'll post later if something  
 






                             

04-05-2010

  I fell back asleep and slept late today after crashing early yesterday. I woke up rested about 10am and knowing that the new fridge was one it's way by 11:15, except it was 30 minutes late. I think they looked at the sidewalk and decided not, but they are to return, they're boss said, lol.

  My mouth has remained painfully dry and my voice strong then going weak and it is still difficult to swallow. The neuropathy went down today in pain on this beautiful day. I finished repairing Spot, actually I got serious and repaired Spot's IACV, now he purrs like a kitten. I worked some on Big Ugly's primer and painted part of the picnic table. The rest of the time was spent with Sears. I also got dad's front end aligned on his pick up while I was there. Helped mom on a Fannie Mae contract. In all the commotion I forgot to eat until tonight. That brings us to here... bedtime.