Rathfoot stopped what I counted 3 times in my throat on the way in looking around. He said that the HBOT had helped by 50%! I've skipped two treatments and since then I have noticed the neuropathy is worse and the fatigue is worse too. Apparently this stuff has a lot of effect on a lot of things. It is a long session and is sometimes trying with the compression and decompression along with the dry mouth, but it is worth it. He also said that my throat may still yet need stretching. We also discussed the saliva glands which he said usually come back within six months to a year and sometimes they don't come back at all. It has also helped with my arthritis I have in my joints.
I'll have my teeth extracted next week and I wonder if and how long I will miss for that. I hope I will not miss too many if at all but I am guessing it will not be a pretty extraction since 3 are broke off under the gum line.
I really didn't get much of anything done today but at least I managed to stay awake.
Thursday, May 6, 2010
Wednesday, May 5, 2010
05-06-2010
We had a follow-up with Panella today. He will not issue and order for the Cat Scan for at least another 6 weeks, said he was going off what Rathfoot sees. I have a lot of confidence in Rathfoot yet he cannot see into the lymph nodes and blood cells. Somehow I can't help but think this is a bad move, then again, it wouldn't be the first bad move now would it.
I woke up with extreme fatigue today, slept almost all the way to Knoxville. I piddled around the house, dug a hole for a corner post by hand, planted some watermellon plants in a bale of straw I bought, and was about to weed a bit in the garden when I got slapped even harder by fatigue. For whatever reason I just couldn't keep myself going so I came into the house and sat down about 3pm and dosed off. The next thing I knew was Megan sitting on the couch doing her homework and she said Denise was home... it was 6:30pm. I figured that I wouldn't be able to sleep tonight but that isn't the case, I'll have no problem tonight.
The neuropathy I thought was better, but today I see I spoke way too soon. Tonight it is as bad as it has ever been. I've made it all day with not enough pain to take pain pills until I awoke at 6:30, I had to take one. I just took another one right now. I cannot figure out what sparks these terrible bouts of fatigue but when they come they drop me like a rock. They remind me of when I took chemo or was in the middle of radiation... intense and out of the blue.
I woke up with extreme fatigue today, slept almost all the way to Knoxville. I piddled around the house, dug a hole for a corner post by hand, planted some watermellon plants in a bale of straw I bought, and was about to weed a bit in the garden when I got slapped even harder by fatigue. For whatever reason I just couldn't keep myself going so I came into the house and sat down about 3pm and dosed off. The next thing I knew was Megan sitting on the couch doing her homework and she said Denise was home... it was 6:30pm. I figured that I wouldn't be able to sleep tonight but that isn't the case, I'll have no problem tonight.
The neuropathy I thought was better, but today I see I spoke way too soon. Tonight it is as bad as it has ever been. I've made it all day with not enough pain to take pain pills until I awoke at 6:30, I had to take one. I just took another one right now. I cannot figure out what sparks these terrible bouts of fatigue but when they come they drop me like a rock. They remind me of when I took chemo or was in the middle of radiation... intense and out of the blue.
Tuesday, May 4, 2010
05-05-2010
It has been a tolerable day on pain. I started off with a Loratab but haven't used anything since. The pain has went from 1-5 but nowhere needing anything for pain. Me and Megan moved an old swing set that I netted last year to use for Okra that grows on a vine one of Denise's coworkers gave us last year that I kept for seed. I looked around again for the seeds I bought for this year but still don't have a clue what I done with them. There are some white tomato seeds that are suppose to be an old heirloom type with low acid that I wanted to grow for mom. Her gout is brought on by acid and she loves tomatoes. I also copied Pacific parts 3 and 4 for the movies to watch.
I tried just a biscuit and jelly this morning and it worked, no acid reflux in the HBOT. It was enough to keep me from getting sick taking all the meds in the morning yet not so much that I got sick from too much on my stomach in the chamber. We didn't dive all the way today, the lady that dives with us had a problem getting her ears to pop so we decompressed to a lesser depth. We also got a new lady today. She is there for a lesion that will not heal from her diabetes, same as the kernel. The other lady and the Army guy has both had radiation years ago. She had tonsil cancer and he had cancer somewhere in his jaw or throat area. She is losing some jaw bone while he has to do 2 weeks to have his teeth pulled.
I've talked with a few people now both face to face and email that have had radiation to their throat and or mouth area. It would seem that there will always be trouble no matter what. Life never goes back the same. I am almost convinced that I should have all my teeth pulled now while I am in this therapy. They all say that they still have trouble afterward only... after a while, nobody listens. There has to be a better way other than to almost kill someone and cripple them to cure this crap. I am still of mind that it is in the food we eat, the math just doesn't add up to genetics unless our genetics are changed. In rats they can change the DNA with food, ever look at what is in our food these days? It is mathematically impossible that a disease that was documented as rare in the early 1900s is now 1 in 1, there haven't been enough generations for that to make any sense. Anyway, most can't tolerate acidic juices anymore and have a lot of problems from their teeth.
Tomorrow we go to Panella. I will ask him about the Cat Scan once again. I'll also ask him how long before the radiation stops "working".
I about forgot. The HBOT or something seems to be helping with my neuropathy too. At night it gets bad but usually during the day it backs off a bit. The jury is still out on that one though.
I tried just a biscuit and jelly this morning and it worked, no acid reflux in the HBOT. It was enough to keep me from getting sick taking all the meds in the morning yet not so much that I got sick from too much on my stomach in the chamber. We didn't dive all the way today, the lady that dives with us had a problem getting her ears to pop so we decompressed to a lesser depth. We also got a new lady today. She is there for a lesion that will not heal from her diabetes, same as the kernel. The other lady and the Army guy has both had radiation years ago. She had tonsil cancer and he had cancer somewhere in his jaw or throat area. She is losing some jaw bone while he has to do 2 weeks to have his teeth pulled.
I've talked with a few people now both face to face and email that have had radiation to their throat and or mouth area. It would seem that there will always be trouble no matter what. Life never goes back the same. I am almost convinced that I should have all my teeth pulled now while I am in this therapy. They all say that they still have trouble afterward only... after a while, nobody listens. There has to be a better way other than to almost kill someone and cripple them to cure this crap. I am still of mind that it is in the food we eat, the math just doesn't add up to genetics unless our genetics are changed. In rats they can change the DNA with food, ever look at what is in our food these days? It is mathematically impossible that a disease that was documented as rare in the early 1900s is now 1 in 1, there haven't been enough generations for that to make any sense. Anyway, most can't tolerate acidic juices anymore and have a lot of problems from their teeth.
Tomorrow we go to Panella. I will ask him about the Cat Scan once again. I'll also ask him how long before the radiation stops "working".
I about forgot. The HBOT or something seems to be helping with my neuropathy too. At night it gets bad but usually during the day it backs off a bit. The jury is still out on that one though.
Monday, May 3, 2010
05-03-2010
First day in a while with no pain meds... it felt good. There was some pain but not enough to warrant taking meds. I keep getting acid reflux in the HBOT very bad. Maybe it is all the pills I take in the morning, maybe it is the food I'm eating. I will try just a biscuit tomorrow. Tonight I have acid reflux again.
Thank God, an event-less day for a change. I really needed this day.
Thank God, an event-less day for a change. I really needed this day.
Sunday, May 2, 2010
05-02-2010
It has been a painful day today. It seems like it hasn't let up and the swallowing isn't any better. I get tired of writing negative stuff but then again I write the truth and it actually came in handy looking back a few days ago. I've used Morphine on and off all day. pretty much all day.
Me and Denise sat and watch The Pacific on HBO most of the day. Not the way I chose to spend the day but I was tired still from running all day Saturday at yard sales. It makes me wonder how I ran all those year carrying packages at UPS. I bet I wouldn't make it over an hour or two now at best.
This is the week we go back to Rathfoot and then Panella, or is it the other way around. I am so glad that Rathfoot doesn't do as Panella likes to be done, not seeing the patient for the first three months. If he had of I would not be writing this now. Hopefully Panella will learn from that, then again, I'd just be counted as one of the failed ones and the word NEXT would be said.
I attempted to tint Spot's windows today. There is a talent for that and I ain't got it, lol. Went to the office tonight and done some stuff for mom. It should have been a simple trip but the neighbor up the street runs the stop sign and cuts me off then stops the car in the road in front of his house abruptly, again cutting me off. I didn't know it was him so when he pulled into his driveway and stopped I also stopped and we exchanged a few words. I called him to finish it out. We did reach a mutual understanding.
Here is a picture of St Mary's Hyberbaric Oxygen Chamber. Pretty cool. Click to enlarge...
Me and Denise sat and watch The Pacific on HBO most of the day. Not the way I chose to spend the day but I was tired still from running all day Saturday at yard sales. It makes me wonder how I ran all those year carrying packages at UPS. I bet I wouldn't make it over an hour or two now at best.
This is the week we go back to Rathfoot and then Panella, or is it the other way around. I am so glad that Rathfoot doesn't do as Panella likes to be done, not seeing the patient for the first three months. If he had of I would not be writing this now. Hopefully Panella will learn from that, then again, I'd just be counted as one of the failed ones and the word NEXT would be said.
I attempted to tint Spot's windows today. There is a talent for that and I ain't got it, lol. Went to the office tonight and done some stuff for mom. It should have been a simple trip but the neighbor up the street runs the stop sign and cuts me off then stops the car in the road in front of his house abruptly, again cutting me off. I didn't know it was him so when he pulled into his driveway and stopped I also stopped and we exchanged a few words. I called him to finish it out. We did reach a mutual understanding.
Here is a picture of St Mary's Hyberbaric Oxygen Chamber. Pretty cool. Click to enlarge...
Saturday, May 1, 2010
05-01-2010
We have kept busy today and this evening, even mowing mom's yard. There is a storm coming, I hear it in the distance. I am worn out yet I hate to go to sleep. I keep dosing off so I guess I had better try.
Friday, April 30, 2010
04-30-2010
Me and Charlie headed of again this morning for the HBOT. I'll have a picture of it to scan and place up, compliments of Dr. Downing. This one went better and it was definitely warmed in the pressurization part of it, even my saliva almost worked a bit for a change. Never though I would want to spit, lol. It got cold depressurizing though, just not as cold as it stayed the other day. Nobody blacked out. One of the people said that the dr was messing with the controls yesterday.
I'm not sure if it is helping or just how much. Denise says that the swelling is leaving yet the swallowing is getting worse and so is the pain. One would think that if it comes under control a bit in the swelling that the pain and swallowing would improve. I'm looking forward to the visit with Dr Rathfoot next week and see what he says after scoping me. Then come Dr Panella to see what he thinks and we're gonna see if he is planning a Cat Scan of the lymph nodes anytime soon. I have an appointment with Dr Boyd to extract the four teeth the radiation caused to break and it would be nice to know it is worth the money, time, and trouble.
Charlie and me went to Grainger county off Lakeshore road and he bought his tomato plants, I got a few more cucumbers, crooked neck squash, and watermelon plants. No banana melons yet. I think I have some seed here somewhere so I'll start my own. We hit a few yard sales on the way back. I bought a few more tools, lol.
I had gone to sleep tonight and had forgotten to post, really nothing much had changed so I was just going to skip. I am really worn out. I woke up fighting for air again. For whatever reason my throat just closed off again while I was sleeping. The adrenalin is really pumping now, lol. That would be the perfect way to go, in my sleep, as long as I don't wake up and smother to death. I've coughed up some puss looking stuff. maybe that is what it was? I have put ice on my neck and I think I will breath a bit of oxygen then try it again.
I'm not sure if it is helping or just how much. Denise says that the swelling is leaving yet the swallowing is getting worse and so is the pain. One would think that if it comes under control a bit in the swelling that the pain and swallowing would improve. I'm looking forward to the visit with Dr Rathfoot next week and see what he says after scoping me. Then come Dr Panella to see what he thinks and we're gonna see if he is planning a Cat Scan of the lymph nodes anytime soon. I have an appointment with Dr Boyd to extract the four teeth the radiation caused to break and it would be nice to know it is worth the money, time, and trouble.
Charlie and me went to Grainger county off Lakeshore road and he bought his tomato plants, I got a few more cucumbers, crooked neck squash, and watermelon plants. No banana melons yet. I think I have some seed here somewhere so I'll start my own. We hit a few yard sales on the way back. I bought a few more tools, lol.
I had gone to sleep tonight and had forgotten to post, really nothing much had changed so I was just going to skip. I am really worn out. I woke up fighting for air again. For whatever reason my throat just closed off again while I was sleeping. The adrenalin is really pumping now, lol. That would be the perfect way to go, in my sleep, as long as I don't wake up and smother to death. I've coughed up some puss looking stuff. maybe that is what it was? I have put ice on my neck and I think I will breath a bit of oxygen then try it again.
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