Well, I bragged too soon, it has all gone to Hell today. First was Denise calling me on her lunch hour and reminding me I had an appointment to have another Krytruda infusion today. I had worked on a couple of pens at the chickens and had managed to get muddy as a hog in slop. Enter bath 2 for the day. I checked my home phone and cell phone both, nothing. No missed calls. Then, later on, yesterday I see I have a new message on my voicemail. I listened then got curious and saw another number, it was the hospital computer telling my answering machine of my appointment. So I call and I do have an appointment.
Now comes the strange part. I did bloodwork prior to my appointment, which is typical. Then usually I see the doctor except now you don't get to see him unless you requested to see him. Then I was told I'd see his associate... unless my bloodwork comes back good, then I'd go to the chemo part. I told her I have some prescriptions they need filling. She said I would meet with the secretary and could tell her. Strike 2. Two people working back there, neither of them seemed impressive. Still, Rachel assured me she would call me this evening with my follow-up date and call in my prescriptions. She said it had been a hectic day, which she seems to have plenty of. Well, the call never came, nor did she call in the prescriptions. In part I blame her, she does not seem to manage her time well. In part, I blame Dr Ghandi (took Dr Flanders place). Keytruda has plenty of side effects, especially with someone who has a T Cell Lymphoma. So why would the prescribing doctor not want to check? They say he is old school, maybe that is why MHH was considered a dog clinic just a few short years ago. I have gone from impressed heavily with MHH to... Not So Much.
This stuff has caused pain in my joints and bones. I have R.A. already so I know about joint pain, this goes that pain times two. Right now I am debating two things. 1- Changing doctors and hospitals. 2- Continuing the Keytruda. I will know a lot more tomorrow when I give Rachel a call. I'm not expecting much.
Now comes the strange part. I did bloodwork prior to my appointment, which is typical. Then usually I see the doctor except now you don't get to see him unless you requested to see him. Then I was told I'd see his associate... unless my bloodwork comes back good, then I'd go to the chemo part. I told her I have some prescriptions they need filling. She said I would meet with the secretary and could tell her. Strike 2. Two people working back there, neither of them seemed impressive. Still, Rachel assured me she would call me this evening with my follow-up date and call in my prescriptions. She said it had been a hectic day, which she seems to have plenty of. Well, the call never came, nor did she call in the prescriptions. In part I blame her, she does not seem to manage her time well. In part, I blame Dr Ghandi (took Dr Flanders place). Keytruda has plenty of side effects, especially with someone who has a T Cell Lymphoma. So why would the prescribing doctor not want to check? They say he is old school, maybe that is why MHH was considered a dog clinic just a few short years ago. I have gone from impressed heavily with MHH to... Not So Much.
This stuff has caused pain in my joints and bones. I have R.A. already so I know about joint pain, this goes that pain times two. Right now I am debating two things. 1- Changing doctors and hospitals. 2- Continuing the Keytruda. I will know a lot more tomorrow when I give Rachel a call. I'm not expecting much.
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