Beautiful day today, I got started about 7am. I helped mom with some BPOs, which I enjoy doing and then came home and started painting the bed on Big Ugly. Shirt off and loving it, all but the pain. I managed to get a bit of a sunburn, get some of that pretty chemo color off, lol. I did figure out pretty quick the neck should have been covered, lol. I do have some feeling in my hand now, closed my finger in the garage door, hurt for a minute, but not too bad. Talked with National Geographic about next week and setting up the interview. The show will be on A&E channel. They are doing a bunch from coast to coast then the producers will pick which ones. Not sure if they use that interview or if they will do another just for the show. If seems a bit different than Fox and Newsweek done.
This stuff that I'm taking for the neuropathy isn't working even though I am up to 600mg twice a day. It is so embarrassing to walk and the longer I am on my feet the more intense it gets. I meant to call Ruth and see about Lavitra but forgot to call early, usually that is the only time you can get her. That lady is busy.
I started three days ago taking B-17 in the form of Amygdalin, 1 pill per day. I just now told Denise. The directions are in Spanish so I figure to be safe, just 1. There is one to look up, lol. I also have been taking my Tumeric Curcumin, 2 capsules a day along with my Ginkgo Biloba (blood thinner), 1 capsule per day.
My mouth is trying to make saliva again, thank God.
The leg is scabbing over where I scalded it but I noticed something, the CTCL is coming back with a vengeance. That would make sense since the chemo has pretty much rendered my defenses obsolete. I really need to take a few NBUVB treatments but I also really need to check first to see if it will cause a cancer on my neck since it is vulnerable. I don't guess anything is ever easy is it? I'd say I'm in a pickle. Wouldn't that be strange to heal on cancer and let the other get you. I may just have to return back to Zic & Greer at Vanderbilt. This stuff is everywhere, kinda like MasterCard & Visa, lol.
If I could get rid of the Neuropathy and if I get some kind of energy and if I get a hold of the CTCL... oh wait, there are a lot of IFs there, lol. Smallest word in the dictionary with the largest meaning.
Tomorrow I have to get started on the taxes.
Monday, March 8, 2010
Sunday, March 7, 2010
03-07-2010
I slept for 10 hours straight before Denise woke me up for breakfast. I sat up maybe an hour thinking what a beautiful day to get more done, but the will and the body differed. So I came back to bed to rest just a bit more and I fell asleep again until I was woken up again about 4pm. My throat was e4xtremely dry yet it feels like a blob of puss obstructing the airway and I feel like I have a temp. I haven't been able to check because I had kept drinking to alleviate the dryness and pain.
The few times I have walked, the pain is still intense in my feet. The numbness has went down in my hands and where I cut an scraped them putting up the garage door I feel pain, a good thing. The numbness in my feet has slowly went down even though the pain is intense... hard to explain but those who have had or have this know what I am talking about.
It's 5:30 and I will probably go back to sleep again. So tired.
The few times I have walked, the pain is still intense in my feet. The numbness has went down in my hands and where I cut an scraped them putting up the garage door I feel pain, a good thing. The numbness in my feet has slowly went down even though the pain is intense... hard to explain but those who have had or have this know what I am talking about.
It's 5:30 and I will probably go back to sleep again. So tired.
Saturday, March 6, 2010
03-06-2010
I woke up early with minimal pain from the neuropathy. It didn't take but a few steps until a slight pain started in my left foot. Me and Denise started on replacing the garage door. We got it up but nowhere complete. Between the pain in my feet and fatigue we stopped after it was secure. I figure I gotta start somewhere building up strength and endurance. Beautiful day today.
The dosage of meds for the neuropathy increased today to 600mg twice a day. If it continues to not work I'm considering asking that we try a different med called Lyrica. I do pretty well with my balance but holding or walking takes a bit. The scalding on my leg is slowly healing and I now get a second opinion before jumping in, lol.
I noticed the CTCL beginning to spread about. I think I will ask about doing a few treatments with the NBUVB to back it off.
The dosage of meds for the neuropathy increased today to 600mg twice a day. If it continues to not work I'm considering asking that we try a different med called Lyrica. I do pretty well with my balance but holding or walking takes a bit. The scalding on my leg is slowly healing and I now get a second opinion before jumping in, lol.
I noticed the CTCL beginning to spread about. I think I will ask about doing a few treatments with the NBUVB to back it off.
Friday, March 5, 2010
03-05-2010
I got up early this morning and somehow that just didn't last, lol. After talking with Sally and hearing how she elevates her feet to help with the neuropathy so I tried it and it worked to some extent. It got it out of my thigh muscles but not my feet. Funny, I know how cow feels. I can walk up steps pretty easy but not down the, lol.
I was tired I guess but with such a beautiful day I ended up getting a battery and putting it on the tractor. Denise had done said no about changing the garage door, lol. Helped mom with some of her stuff and researched Cabins for mine and Denise's 21st anniversary coming up soon. Done some other odds and ends like gave a mineral block to the cows and got my tags renewed for the bike. I can't ride it yet but that is one of my goals, to ride more this summer. There is a good 2 days worth of polishing the chrome.
I think if it would stay pretty I could heal faster, that of course is dependent upon my feet. I want to gain but not gain any more fat than I have to. I have high hopes for tomorrow in what I get done.
I talked with a lady today that her husband is being tested for CTCL, a Non Hodgkin's Lymphoma. I hope he does not have it. If he does though I told her not to worry, I was diagnosed 07-01-2005, my oldest daughter's birthday.
Patty (my cousin) came in from FL the other day and said she was preparing her for the worst when she saw me, she was shocked pleasantly. Patty, Show your mom Billie this picture so she will know I'm ok and tell her I love her.
I was tired I guess but with such a beautiful day I ended up getting a battery and putting it on the tractor. Denise had done said no about changing the garage door, lol. Helped mom with some of her stuff and researched Cabins for mine and Denise's 21st anniversary coming up soon. Done some other odds and ends like gave a mineral block to the cows and got my tags renewed for the bike. I can't ride it yet but that is one of my goals, to ride more this summer. There is a good 2 days worth of polishing the chrome.
I think if it would stay pretty I could heal faster, that of course is dependent upon my feet. I want to gain but not gain any more fat than I have to. I have high hopes for tomorrow in what I get done.
I talked with a lady today that her husband is being tested for CTCL, a Non Hodgkin's Lymphoma. I hope he does not have it. If he does though I told her not to worry, I was diagnosed 07-01-2005, my oldest daughter's birthday.
Thursday, March 4, 2010
03-04-2010
I woke up this morning with my upper legs feeling like I had ran a marathon. My thigh muscles ache and pain meds have no effect on them, I tried a Loratab with no results. Going up steps isn't as bad as going down them. I more or less walk down them with my arms on the rails. The pain is back in my feet. The dosage is up to 400 mg twice per day of the Gabapentin so one would think the pain would either be gone or decreased, yet it increases. I've also gotten to where I get up fast and have head spins and loss of balance, but it usually doesn't last too long. I'm still numb on my left forehead that comes and goes. Sitting down, getting out of the car or chair is becoming difficult.
I'm doing the last week of the patch and by the end of the week I will be done with them, thank God. I have pills waiting but probably not enough to finish the tapering. I think however that I have enough to get me though til Monday. Ok scratch that, Denise said I have 2 more to go after this one.
My hair is coming in good though. The front however is fairly thin. Denise said I look like The Transporter, lol. That beats Jack Nicholson, lol. My beard is full now where I have hair. You can see the outline of the radiation and where they hit it. So strange. It is suppose to be pretty this weekend so maybe I can begin to rebuild my muscles. I would love to ride my bike but I don't dare, I'm not even sure that I can hold it up.
I've went back to taking Ginko Biloba for my blood thinner and Turmeric Curcumin which has a lot of good qualities. If I can get my system clean I will start the B-17.
Denise said she finally got help with her Blood Pressure today which takes a lot of stress off. I know what happened when I ignored mine. Funny, I too said that it makes me work faster and harder and it did, for a while. Definitely nothing to mess with. Denise fills in all the things I lack as a person. I really do not think she knows how much she means to me and the kids.
Beautiful day today though. I put out a Sulfur Block to the cows and got chicken feed. I went by where she works and was going to speak with Rama about her Blood Pressure, but she promised that she would do it herself. I received my new garage door and hopefully I will install it this weekend. That should be a real test. Maybe clean up a bit around outside if I get that done before National Geographic which is coming they think next week for the first interview. Right now it looks pretty bad.
The scalding I done on my legs is tolerable today and finger healing quite well. The skin on my feet look bad but I don't feel it, just the bottoms. Note to self, try feeling the warmth with arms not hands, lol. All in all, a good day. I've seen better, but I've seen much, much, worse.
I'm doing the last week of the patch and by the end of the week I will be done with them, thank God. I have pills waiting but probably not enough to finish the tapering. I think however that I have enough to get me though til Monday. Ok scratch that, Denise said I have 2 more to go after this one.
My hair is coming in good though. The front however is fairly thin. Denise said I look like The Transporter, lol. That beats Jack Nicholson, lol. My beard is full now where I have hair. You can see the outline of the radiation and where they hit it. So strange. It is suppose to be pretty this weekend so maybe I can begin to rebuild my muscles. I would love to ride my bike but I don't dare, I'm not even sure that I can hold it up.
I've went back to taking Ginko Biloba for my blood thinner and Turmeric Curcumin which has a lot of good qualities. If I can get my system clean I will start the B-17.
Denise said she finally got help with her Blood Pressure today which takes a lot of stress off. I know what happened when I ignored mine. Funny, I too said that it makes me work faster and harder and it did, for a while. Definitely nothing to mess with. Denise fills in all the things I lack as a person. I really do not think she knows how much she means to me and the kids.
Beautiful day today though. I put out a Sulfur Block to the cows and got chicken feed. I went by where she works and was going to speak with Rama about her Blood Pressure, but she promised that she would do it herself. I received my new garage door and hopefully I will install it this weekend. That should be a real test. Maybe clean up a bit around outside if I get that done before National Geographic which is coming they think next week for the first interview. Right now it looks pretty bad.
The scalding I done on my legs is tolerable today and finger healing quite well. The skin on my feet look bad but I don't feel it, just the bottoms. Note to self, try feeling the warmth with arms not hands, lol. All in all, a good day. I've seen better, but I've seen much, much, worse.
Wednesday, March 3, 2010
03-03-2010
Busy day today. Me and mom went back again today to finish what we started yesterday with the proper supplies. She drove all the way. We came back and I went to Allen Surrette Hardware and bought Denise 2 pieces of old Corning glass cook wear, the one that was missing was the one she wanted. Went to the office for something... don't remember, lol. I got on the computer and work some more on it, changing the report from a long time ago.
Patty came in with her daughter who I didn't recognize. She was tall and I guess I thought she should still be little.It was good to see here again.
Spoke with the lady from National Geographic about setting up an interview next week. Hopefully by then I'll have some decent hair.lol.
The medicine for the neuropathy is failing slowly, I'm not sure why, even though the dose has doubled.
Watched American Idol, took a bath (cooler one, lol) then got on the computer. I thought I'd be smart and put some of the cream from the Amish store on where I burnt my legs and feet... wrong more. I tried blowing them, washing off the stuff and finally went for a pain pill. Here it is 45 minutes later and it has backed off. Now maybe I can get some sleep. Pretty pathetic, eh? It's going on 3am.
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Patty came in with her daughter who I didn't recognize. She was tall and I guess I thought she should still be little.It was good to see here again.
Spoke with the lady from National Geographic about setting up an interview next week. Hopefully by then I'll have some decent hair.lol.
The medicine for the neuropathy is failing slowly, I'm not sure why, even though the dose has doubled.
Watched American Idol, took a bath (cooler one, lol) then got on the computer. I thought I'd be smart and put some of the cream from the Amish store on where I burnt my legs and feet... wrong more. I tried blowing them, washing off the stuff and finally went for a pain pill. Here it is 45 minutes later and it has backed off. Now maybe I can get some sleep. Pretty pathetic, eh? It's going on 3am.
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