Thursday, April 2, 2015

04-02-2015

  I am awake tonight and kind of excited. Tomorrow morning I will get to sleep late. No up before 6, no 1 hour commute, no 2 hour treatment (dive), no 1 hour back commute. I encourage you to look into this if you suffer from Radiation damage, burns, or Diabetes and have a sore that won't heal. There is probably more this will work for too, but that covered the ones I done "Dives" with. The treatments are called "Dives" and one has a choice of the casket looking boxes where you get in an all clear box and lay down, or ones like I have done which are like a part of a Submarine (or large tank) that holds 10 plus an ENT. If you have a doctor that does not support it insist, and if that don't work find a doctor that wants to help you. I really don't see why a doctor would not want this for a patient that can benefit. If you think it looks claustrophobic, it is, but they will help you with that too. This saved my throat in 2010, and now in 2015 it has saved it again. Radiation is the gift that just keeps on giving. There has to be a better way.

  I now retire my helmet but should I ever need to use it again, I would not hesitate.

    

Wednesday, April 1, 2015

04-01-2015 End Of HBOT

  Tomorrow, 4-2-2015, ends my HBOT (Hyperbaric Oxygen Therapy) finally. I have done 60 treatments or as they are called, "Dives". This time I have finished my rounds and that is due to the excellent staff they have. A big Thank You is in order for Dr Hall, (2 doctors I don't recall the names), Sherri, Starla, John, Caleb, Charlie, and Brian. These people do a fantastic job. They have people who come and get you and take you home this time too, and I thank them as well. Jamie, Cindy, Bill, Billy, and James - those were the ones who drove me to and from. This will be Dive number 60. I thought Friday was 60 but hey, I'm tickled that Thursday is the last one. I was with a great group of people too and I will keep them in my prayers that they too heal well and complete. We had a good group, people came and went, but all were good people. Just in case the ones who were there for radiation damage to their throat like I was, hang in there, you got this. None of this would have been possible if not for Dr Rathfoot, who I thank so ever much. I get to keep my throat, at least for now.


  I had a follow-up with Dr Bushkell, didn't go as good as it could have but more along the lines I thought it would. He is an excellent doctor. The NHL (T Cell Lymphoma) is advancing, which I have been blessed that this is 10 years now that it moved slow. I will see if the sun helps and if not if the Narrow Band Ultra Violet Light Therapy (NBUVB) treatments will back it off along with my ointment, but if not then it is what it is. He offered and I declined some of the treatments that are pretty harsh. I am so tired. This is the hardest time, night when I am still. The itching and pain can break through to keep one from sleep. Usually Advil and making a bed in the floor helps. I've had worse, lol.

  I finished a small greenhouse with Megan's help. I still want to place 2 shelves inside it but it could be used as is if I wanted to. I used the cheap plastic from Lowe's instead of the expensive greenhouse plastic. It didn't turn out as clear as the one I saw a guy on the web build but this was my first time and I wanted to get my feet wet before spending 100 bucks on a good plastic. Good thing I did too, this takes skill, which I do not yet have but I will the next time. On Youtube it is called the Tx Prepper Greenhouse and really simple to make plus fairly cheap too. I did make a few changes in mine though. Megan has learned a simple build now too, so that is great. 

  I wish everyone a Happy Easter and for those who celebrate Passover, a happy one.    

Wednesday, March 18, 2015

Happy Anniversary

Happy 26th Anniversary 


I love you. 


Friday, March 13, 2015

Happy Birthday Baby


Happy 9th Birthday

Alexandra 

(aka Baby)

 

Love You

Sunday, March 1, 2015

03-01-2015 Update

   Well over the last 2 weeks I've attended HBOT (Hyperbaric Oxygen Therapy) only twice I believe, due to weather. I've lost ground some on the improvement that was taking place, but that should change once everything is back on schedule. Hopefully that was the last of the extreme cold weather and snow and ice. I have to admit though, it was kind of nice to sleep in.

  I've managed to get a side effect from this that hopefully will be short lived, I've lost a lot of vision, at least half what I usually have. The only upside to that is I look better in the mirror now. If I can describe this accurately or even sort of: Nearsighted vision is worse than usual. It is a known side effect and hopefully will reverse after this is over, which looks like a long time. Everything is way out of focus and it's like the convergence is set high bleeding out on white or lighted things. I'll not give the real names of the others in there, but one, we'll call him D has lost more than I have. He has to sit at the monitor to be able to read the words on the movies.

  There are usually several of us in there and it changes from day to day. Some days it is others who have had neck or head radiation and the others have diabetes and sores that will not heal. Some have had operations that will not heal with their diabetes. The ones who suffer radiation damage are a lot like me, some are worse like D is. I'm not sure if they are in danger of losing their throat due to the radiation damage causing the cartridge to harden and die, but I suspect they are. D and another guy, H, have never recovered their Saliva Glands. From the 90 I done in 2010 a miracle occurred and I have 1 that works most days most times. It isn't enough to keep me from having to carry liquid with me or to eat without a lot of liquid, but it is better than nothing. They usually offer cough drops and D says there is no point in them giving him one because he has no saliva to dissolve it with. I remember those days.

  So tomorrow we switch areas from St Mary's, now Tennova downtown to Parkwest which is owned by Covenant Health (cough cough) Systems. I am no fan of Covenant nor the lack of care they give or the way they treat their employees. I don't care for their doctors either. Their lack of care missed mom's Leukemia and later on female cancer. Plus years past I have been there as a patient and know they are way lacking. The owners of HBOT have moved it to there though, shame it wasn't at UT. We keep the same doctors and staff plus the drivers will be the same, which is a plus. Now if Covenant will step aside and allow the ones now giving service to continue at the level they already do it will be ok. If not, then we will see what is next. I know I will not do a throat resection, but that doesn't mean I will bow. 



  


        

Monday, January 12, 2015

1-12-2015 Follow-Up

  I had a follow-up with Rathfoot today to see how HyperBaric Oxygen (HBOT) treatments are working. He wanted to see me after 10 treatments and today's made the 11th. I can tell a difference in my breathing and swallowing after that few. He saw a difference in it when he scoped me, but I don't think it was as much difference as he had hoped for. He said if he done surgery to do injections again that he didn't think I would be able to breath without a trach. He thought as soon as the breathing tube pulls out my throat would close off. I told him I was opposed to a trach and would not do one.

  We left it at he is going to try and get the insurance company to approve more treatments, but I have to go back fairly soon to be checked again. He said he would let me be the optimist, he would be the pessimist, and Denise could be the judge. I am refusing resection of my voice box or any other part that would leave a permanent hole. Apparently my danger is in getting a cold, but the real fatal danger is sleeping. I believe I have all the loose ends tied up, so it is in God's hands now, I'm good with whichever way this goes.

  I've been battling the Non Hodgkin's Lymphoma a lot lately. For whatever reason it has kicked into high gear and this time I can't seen to control the patches. I'd post a question on the Lymphoma Board but I have little confidence in that. I read it but stopped participating in it a long time ago. I have few friends there left alive anyway and I watch the same questions as was there ten years ago.

  I do HBOT with a few people, many are Diabetics who are fighting to save an amputation of a limb. It is a slow progress but I've yet to see it fail and of those times are when Insurance Companies drop their coverage for it. I hope the ones who make that decision dress light when they die because I serious doubt God will approve of their fruit and drop His coverage of them. There are several I've met with radiation burns to the neck (throat) who now battle to keep what they have after the cancer is gone. I would love to know where the adage "Do no harm" comes in that oath they take is.  

Wednesday, December 31, 2014