A Blog I hope that I keep up that will put perspective on just what I have experienced and what you can expect, God forbid, you should get it.
This Blog reads backwards from the most current to the beginning.
The results came back on my blood work and Denise will fax them to Dr Bushkell this week after she goes over them with Deb to see what she thinks. My Platelets are low and I assume that means we don't have lunch, lol. Why they are low is a good guess. The Prednisone, Non Hodgkin's Lymphoma kicking it up a notch, who knows. Everything else seems to be OK she said, so that is a good thing. I figured something was up. I bump myself and bruise and I don't normally bruise. My skin also tears easily and I bleed like crazy. Of course it is always in the back of my mind what if the other cancer is back. I looked on WebMD and it says that fatigue goes with the low platelets, and there I thought it was because I'm fat. I figured the tired all the time was from the weight gain. I'm either fat or under tall and since my feet are going out of sight I figured fat. If it is the NHL I will not do anything more than I am now unless it would be natural. I will just ride it out and pray the ride ends fast.
It is spring and garden season, now to get it put out. We got it out last year but I just wasn't able to maintain it like I should have been able to do. This year we will do the green beans again, first time in 2 years. I tilled Charlie's garden with the Rotorvator, but he is not sure if he will get to put one out. It seems he is having a hard time too, but in a different way. He has a series of blood clot or something like clots in his right leg all the way into his foot. William can't help him with it either, he is down to 15% of his Kidneys and suppose to start Dialysis. Tina had a heart attack, but she is doing good. It has been a Hell of a year again. One thing is for sure, there ain't many of us left now to lose so maybe the newer generations will fair better. Mark was a plus, his sight in one eye has been restored and next is the other eye. Annie graduated RN school, there is yet another plus. We go Thursday to see her graduate or get Pinned or something, maybe both?
I think of something I heard that I liked and seems to be true. If you want to make God laugh, make plans. Certainly life has not quite turned out like I had thought when I was young, but that doesn't mean it didn't turn out. I have been blessed with the good times, and to have survived and eventually thrived through the bad. Not that I'm a Saint but in the journey I lost me way, but found it back again. I would say I found God, except it wasn't Him that was lost, it was me. If life had been easy that never would have happened, so I am blessed. It isn't this world we should seek but the next. Whatever comes of this will come and we will deal with it as best we can as long as we can. Its all good.
I am awake tonight and kind of excited. Tomorrow morning I will get to sleep late. No up before 6, no 1 hour commute, no 2 hour treatment (dive), no 1 hour back commute. I encourage you to look into this if you suffer from Radiation damage, burns, or Diabetes and have a sore that won't heal. There is probably more this will work for too, but that covered the ones I done "Dives" with. The treatments are called "Dives" and one has a choice of the casket looking boxes where you get in an all clear box and lay down, or ones like I have done which are like a part of a Submarine (or large tank) that holds 10 plus an ENT. If you have a doctor that does not support it insist, and if that don't work find a doctor that wants to help you. I really don't see why a doctor would not want this for a patient that can benefit. If you think it looks claustrophobic, it is, but they will help you with that too. This saved my throat in 2010, and now in 2015 it has saved it again. Radiation is the gift that just keeps on giving. There has to be a better way.
I now retire my helmet but should I ever need to use it again, I would not hesitate.
Tomorrow, 4-2-2015, ends my HBOT (Hyperbaric Oxygen Therapy) finally. I have done 60 treatments or as they are called, "Dives". This time I have finished my rounds and that is due to the excellent staff they have. A big Thank You is in order for Dr Hall, (2 doctors I don't recall the names), Sherri, Starla, John, Caleb, Charlie, and Brian. These people do a fantastic job. They have people who come and get you and take you home this time too, and I thank them as well. Jamie, Cindy, Bill, Billy, and James - those were the ones who drove me to and from. This will be Dive number 60. I thought Friday was 60 but hey, I'm tickled that Thursday is the last one. I was with a great group of people too and I will keep them in my prayers that they too heal well and complete. We had a good group, people came and went, but all were good people. Just in case the ones who were there for radiation damage to their throat like I was, hang in there, you got this. None of this would have been possible if not for Dr Rathfoot, who I thank so ever much. I get to keep my throat, at least for now.
I had a follow-up with Dr Bushkell, didn't go as good as it could have but more along the lines I thought it would. He is an excellent doctor. The NHL (T Cell Lymphoma) is advancing, which I have been blessed that this is 10 years now that it moved slow. I will see if the sun helps and if not if the Narrow Band Ultra Violet Light Therapy (NBUVB) treatments will back it off along with my ointment, but if not then it is what it is. He offered and I declined some of the treatments that are pretty harsh. I am so tired. This is the hardest time, night when I am still. The itching and pain can break through to keep one from sleep. Usually Advil and making a bed in the floor helps. I've had worse, lol.
I finished a small greenhouse with Megan's help. I still want to place 2 shelves inside it but it could be used as is if I wanted to. I used the cheap plastic from Lowe's instead of the expensive greenhouse plastic. It didn't turn out as clear as the one I saw a guy on the web build but this was my first time and I wanted to get my feet wet before spending 100 bucks on a good plastic. Good thing I did too, this takes skill, which I do not yet have but I will the next time. On Youtube it is called the Tx Prepper Greenhouse and really simple to make plus fairly cheap too. I did make a few changes in mine though. Megan has learned a simple build now too, so that is great.
I wish everyone a Happy Easter and for those who celebrate Passover, a happy one.
Well over the last 2 weeks I've attended HBOT (Hyperbaric Oxygen Therapy) only twice I believe, due to weather. I've lost ground some on the improvement that was taking place, but that should change once everything is back on schedule. Hopefully that was the last of the extreme cold weather and snow and ice. I have to admit though, it was kind of nice to sleep in.
I've managed to get a side effect from this that hopefully will be short lived, I've lost a lot of vision, at least half what I usually have. The only upside to that is I look better in the mirror now. If I can describe this accurately or even sort of: Nearsighted vision is worse than usual. It is a known side effect and hopefully will reverse after this is over, which looks like a long time. Everything is way out of focus and it's like the convergence is set high bleeding out on white or lighted things. I'll not give the real names of the others in there, but one, we'll call him D has lost more than I have. He has to sit at the monitor to be able to read the words on the movies.
There are usually several of us in there and it changes from day to day. Some days it is others who have had neck or head radiation and the others have diabetes and sores that will not heal. Some have had operations that will not heal with their diabetes. The ones who suffer radiation damage are a lot like me, some are worse like D is. I'm not sure if they are in danger of losing their throat due to the radiation damage causing the cartridge to harden and die, but I suspect they are. D and another guy, H, have never recovered their Saliva Glands. From the 90 I done in 2010 a miracle occurred and I have 1 that works most days most times. It isn't enough to keep me from having to carry liquid with me or to eat without a lot of liquid, but it is better than nothing. They usually offer cough drops and D says there is no point in them giving him one because he has no saliva to dissolve it with. I remember those days.
So tomorrow we switch areas from St Mary's, now Tennova downtown to Parkwest which is owned by Covenant Health (cough cough) Systems. I am no fan of Covenant nor the lack of care they give or the way they treat their employees. I don't care for their doctors either. Their lack of care missed mom's Leukemia and later on female cancer. Plus years past I have been there as a patient and know they are way lacking. The owners of HBOT have moved it to there though, shame it wasn't at UT. We keep the same doctors and staff plus the drivers will be the same, which is a plus. Now if Covenant will step aside and allow the ones now giving service to continue at the level they already do it will be ok. If not, then we will see what is next. I know I will not do a throat resection, but that doesn't mean I will bow.