Friday, December 20, 2013


Well mom wasn't able to do chemo and they said she would never be able to do it. They are trying to figure out an oral treatment that will not effect her bone marrow. Mom seemed in good spirits, Kilgore told her he wasn't giving up and would find something to help her. I actually believe he will too. Like most at UT I have seen they actually seem to care a great deal.

  I went today to Schindler and he gave me a remedy to try for Restless Leg Syndrome, so I'll pass that along. Iron, Magnesium, and Vit C each day. I have the Vit C pills and the Mag ones, can't swallow them though, but a friend told me to mix them with water and drink after crushing. He said I could flavor them but I don't have a lot of taste buds that work, so flavor isn't a problem. He prescribed me some ointment for the sores on my scalp, not sure what it is though, I haven't picked it up yet. A lady sent me an email from the Lymphoma Board, she said her message wouldn't go through. She told me what was prescribed to her. I'm not sure why exactly the Lymphoma Board partially works, though I was the only one for a minute. I have patches from head to toe so I figured it was the CTCL acting up again. I may have to go back to Vanderbilt, but first I'll fire up my NBUVB and do some treatments.

  The med for the narcoleptic episodes is about so-so. The first day led to headache and A Fib later on. The second day worked ok. Today, not so much, then again I haven't kissed the floor or swapped all the lanes while driving since I've been on it. That is some weird stuff, not like falling asleep, more like blacking out. Hopefully it will get me moving and I can lose some of this weight, 236 is just too much. I swore I was going to diet, and I am, just as soon as the holidays are over and left overs are gone. :)

  If I don't get to post between now and Christmas, Merry Christmas to all.