Had a call about 9pm tonight coming from MHH, said I would be checked before entering the building and visit the doctor after which was suppose to be a KeyTruda infusion, except there will be no infusion this day. This is the same girl that screwed up multiple times already on multiple people. I may just ask that they schedule a time to remove the port since I will not be needing it.
A Blog I hope that I keep up that will put perspective on just what I have experienced and what you can expect, God forbid, you should get it. This Blog reads backwards from the most current to the beginning.
Monday, March 16, 2020
Wednesday, March 11, 2020
Dr Rathfoot stretches my throat and does Kenalog Injections
Well here it is 03-11-2020, and I had my throat worked on again, and it probably will not be the last. That said it is a small, very small price to pay to gain living 20 more years. UT did great from registering, in the prep area, surgical area, and recovery area, they were a team of nice ladies and gentlemen. It was most representative of my care when I had throat cancer, minus the radiation part. Then again, Dr. Rathfoot was the surgeon, a finer doctor you will never meet.
I begged Denise to take me shopping and finally, she did, which led to what she said it would, I became a tad overwhelmed. When that surgical numbing comes off and the steroids, one remembers they are limited and human, lol. Denise said he said something about most people are 50, I assume the diameter in cemeteries or perhaps, then again swelling percent closed or open. I asked twice and Denise was understandable worn out and a bit puffy. While my head was still attached, I remained silent. Perhaps I will ask her another day. I go back for a follow-up next week. I do know he stretched my throat and done several Kenalog Injections in my throat. He said he was worried about the chest radiation after the damage left behind in 2010 throat radiation but was relieved. That credit goes to my radiation doctor, Anderson and staff at Morristown Hamblen Hospital.
Tonight, my throat is closing off some, I guess I may have done too much and Denise went to bed 3 hours ago. My head is of two feelings, maybe three. The tip-top is still numb while the area where the shots were injected (just below the top), are extremely sore from the 30 shots of lidocaine it too to numb my head enough to drill those 4 screws into my skull. For a moment, maybe a phantom pain, I felt sore about where they used the Gama Knife. The day that happened I had a brief moment of vertigo. I was headed to feed the cows, I had timed it two days after the surgery. I sat on the cattle trailer until I regained most of my balance, about 15-20 minutes, then went on.
This timing session hasn't gone so well, I messed up planning. I had planned to lay around for a day like I did the brain surgery but I noticed while we came down the road they will be out, probably already are of hay. Tomorrow I have to pay the Insurances then come back and feed the cows. Then I think I will just couch potato it.
On a serious note: I have no idea why God brings me through this stuff, but so far He has. I am not better than others, probably worse in some ways. I was told I gave strength and hope to others struggling if they see strength in me or hope it is misplaced. God is the Hope for me, for everybody, and if they think I have a strength, that too belongs to God as He has carried me at times, most times though this all. I do not understand why I remain but I do remember that night January 31st, 2005. I remember what I saw, what I felt... and perhaps that is why I have unbreakable faith when I had doubt until that night. I also saw what I was before I was forgiven and that causes me to ask, if not me then who deserves this more than I.
I begged Denise to take me shopping and finally, she did, which led to what she said it would, I became a tad overwhelmed. When that surgical numbing comes off and the steroids, one remembers they are limited and human, lol. Denise said he said something about most people are 50, I assume the diameter in cemeteries or perhaps, then again swelling percent closed or open. I asked twice and Denise was understandable worn out and a bit puffy. While my head was still attached, I remained silent. Perhaps I will ask her another day. I go back for a follow-up next week. I do know he stretched my throat and done several Kenalog Injections in my throat. He said he was worried about the chest radiation after the damage left behind in 2010 throat radiation but was relieved. That credit goes to my radiation doctor, Anderson and staff at Morristown Hamblen Hospital.
Tonight, my throat is closing off some, I guess I may have done too much and Denise went to bed 3 hours ago. My head is of two feelings, maybe three. The tip-top is still numb while the area where the shots were injected (just below the top), are extremely sore from the 30 shots of lidocaine it too to numb my head enough to drill those 4 screws into my skull. For a moment, maybe a phantom pain, I felt sore about where they used the Gama Knife. The day that happened I had a brief moment of vertigo. I was headed to feed the cows, I had timed it two days after the surgery. I sat on the cattle trailer until I regained most of my balance, about 15-20 minutes, then went on.
This timing session hasn't gone so well, I messed up planning. I had planned to lay around for a day like I did the brain surgery but I noticed while we came down the road they will be out, probably already are of hay. Tomorrow I have to pay the Insurances then come back and feed the cows. Then I think I will just couch potato it.
On a serious note: I have no idea why God brings me through this stuff, but so far He has. I am not better than others, probably worse in some ways. I was told I gave strength and hope to others struggling if they see strength in me or hope it is misplaced. God is the Hope for me, for everybody, and if they think I have a strength, that too belongs to God as He has carried me at times, most times though this all. I do not understand why I remain but I do remember that night January 31st, 2005. I remember what I saw, what I felt... and perhaps that is why I have unbreakable faith when I had doubt until that night. I also saw what I was before I was forgiven and that causes me to ask, if not me then who deserves this more than I.
Tuesday, March 3, 2020
No KeyTruda today, except nobody told me the schedule had changed.
Well, I was supposed to have a KeyTruda infusion today, which is a form of chemo that is supposed to keep away cancer from coming back by arming your T Cells. That didn't happen. It has rained enough to cause flooding here in East Tennessee which is better than Nashville got it. So my wife takes off from work long enough to stay there with me and brings me home. So we take off, drive through flooded streets, get there and are told that it has been canceled until I do a CT scan on the 10th.
For all the great people working there, why I left UT, this Rachelle lady and her buddy are the broken cogs in the wheel. She left me in the system, scheduled the CT Scan and never told us about any of the changes. This is NOT her first time doing this stuff. She said she had left a message yet my cell phone didn't have any messages, the home phone didn't have a message, and the alternate phone number wasn't even in Tennessee! She must be either kin or sleeping with someone there to remain in her job because there are other patients that warned us of her and another girl she works with. To add to that she has the personality of a rock, feeling high and mighty and superior to everybody else.
Why a hospital would employ such inept people I have no idea. This reflects on the hospital and between that and not being able to keep an Oncologist are beginning to look bad. It has made me rethink things. Luckily for MHH, UT sucks with billing and Tenova is even worse. That said, my next surgery will be at UT.
For all the great people working there, why I left UT, this Rachelle lady and her buddy are the broken cogs in the wheel. She left me in the system, scheduled the CT Scan and never told us about any of the changes. This is NOT her first time doing this stuff. She said she had left a message yet my cell phone didn't have any messages, the home phone didn't have a message, and the alternate phone number wasn't even in Tennessee! She must be either kin or sleeping with someone there to remain in her job because there are other patients that warned us of her and another girl she works with. To add to that she has the personality of a rock, feeling high and mighty and superior to everybody else.
Why a hospital would employ such inept people I have no idea. This reflects on the hospital and between that and not being able to keep an Oncologist are beginning to look bad. It has made me rethink things. Luckily for MHH, UT sucks with billing and Tenova is even worse. That said, my next surgery will be at UT.
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