Tuesday, August 24, 2010
08-24-2010
I got the yard mowed, Okra cut, and worked again on the boat with Matt. We have success on the switch, now the rest of it, lol. Then enjoyed a few Pears with the Llama. She is like her mom and dad. I ate Pears every year with them. I really need to get her a buddy. Everything is laid out for my biopsy. I dread it yet look forward to it. It would have been nice if it didn't need done. The pain has just now become tolerable without anything being used for the last couple of weeks.
The neuropathy hasn't changed but the loud hissing in the ears have become less frequent now. After a heavy dose of predisone the swelling is less now, easier to breathe. I'm not sure what the answer is to the swelling and I don't think they do either. Balance has been off for a change more than usual. My hair is thinning and beginning to straighten out.
This is an emotional roller coaster ride for all of us. I imagine just enjoy the high points and pray it ends soon. Oh yes, and me and Megan went around the block on the bike. I actually think the bike's vibration helps the neuropathy.
http://www.youtube.com/watch?v=-quOpUPVsLo
The neuropathy hasn't changed but the loud hissing in the ears have become less frequent now. After a heavy dose of predisone the swelling is less now, easier to breathe. I'm not sure what the answer is to the swelling and I don't think they do either. Balance has been off for a change more than usual. My hair is thinning and beginning to straighten out.
This is an emotional roller coaster ride for all of us. I imagine just enjoy the high points and pray it ends soon. Oh yes, and me and Megan went around the block on the bike. I actually think the bike's vibration helps the neuropathy.
http://www.youtube.com/watch?v=-quOpUPVsLo
Thursday, August 19, 2010
08-19-2010
I got a call from St Mary's Hospital getting all the info down and ready. We went over all the drugs and supplements I take, bet she got writers cramp, lol. They put me on high dosage or predisome (and I can't spell that word) which has taken the swelling down and the pain along with it, for the most part. Not near as much blood to get up in the morning, love that.
The neuropathy is bad tonight and wasn't much better today. Sally said hers was worse too tonight. I keep wondering about the barometric pressure. There has to be something in common. If we just had more.
I canceled the sleep study after talking with Kim. Rathfoot said he had not considered that my throat would not withstand the pressure and thought it was a good idea. Thank you once again Kim. And by the way, I am jealous. You and your husband rode the dragon. ME and Denise haven't gotten to do that yet.
I have Megan lined up for a meeting with Art for her evaluation and then he will tell us what needs to be done. More importantly, he will tel the school. Thank you Dale. I dropped your name and he says you are THE BEST Interpreter there is. But we all knew that now didn't we. Megan and Terry talk on the web. Meeting Terry was good for her too, thank you. Megan sees now that she can function normally, well, as normal as she can. I think she likes him but he is a bit old for her. Nice boy though. You get time Dale I want a family picture made while there is still 5 generations left.
I talked with Johnny today briefly at the funeral home just in case. That will keep Denise from spending a lot of money on it. Hopefully it will not come to that but it is better to be prepared. It would make it easier on her. Got April's seeds packed up and ready to go. She is such an inspiration.
We laughed over my name in the paper where I spoke at the county commission meeting. It feel on deaf ears though. I did get a long round of applause and some calls. I am considering a petition. people get the government they deserve. Hopefully our people will stand their ground.
The neuropathy is bad tonight and wasn't much better today. Sally said hers was worse too tonight. I keep wondering about the barometric pressure. There has to be something in common. If we just had more.
I canceled the sleep study after talking with Kim. Rathfoot said he had not considered that my throat would not withstand the pressure and thought it was a good idea. Thank you once again Kim. And by the way, I am jealous. You and your husband rode the dragon. ME and Denise haven't gotten to do that yet.
I have Megan lined up for a meeting with Art for her evaluation and then he will tell us what needs to be done. More importantly, he will tel the school. Thank you Dale. I dropped your name and he says you are THE BEST Interpreter there is. But we all knew that now didn't we. Megan and Terry talk on the web. Meeting Terry was good for her too, thank you. Megan sees now that she can function normally, well, as normal as she can. I think she likes him but he is a bit old for her. Nice boy though. You get time Dale I want a family picture made while there is still 5 generations left.
I talked with Johnny today briefly at the funeral home just in case. That will keep Denise from spending a lot of money on it. Hopefully it will not come to that but it is better to be prepared. It would make it easier on her. Got April's seeds packed up and ready to go. She is such an inspiration.
We laughed over my name in the paper where I spoke at the county commission meeting. It feel on deaf ears though. I did get a long round of applause and some calls. I am considering a petition. people get the government they deserve. Hopefully our people will stand their ground.
Tuesday, August 17, 2010
o8-17-2010
I went this morning and had an EKG and was checked out, which was ok. It is faxed along with clearance for the upcoming surgery next week. I can't remember how long I was out or how long I was down. Maybe they will tell me. Just so long as I don't wake up with an extra hole.
I rode Denise then Megan on the bike Sunday, it was so much fun. I rode it today briefly. Just in case, I really need to get some stuff done outside, actual work done. Some pain today, but not too bad. Neuropathy though has been bad.
Pretty snazzy look now eh? I changed the skin on the Blogger.
I rode Denise then Megan on the bike Sunday, it was so much fun. I rode it today briefly. Just in case, I really need to get some stuff done outside, actual work done. Some pain today, but not too bad. Neuropathy though has been bad.
Pretty snazzy look now eh? I changed the skin on the Blogger.
Friday, August 13, 2010
08-13-2010
An appointment with Dr Rathfoot turned out much better today. While he isn't sure if cancer is in there, he says that he believes that it is just inflammation from the radiation. He said that my cartilage was lighting up from all the damage the radiation has done. He said that it looked like water balloons in my throat from the swelling. He mostly talked with Denise and I listened but I got lost. I knew that Denise could interpret to me what was said. Rathfoot took his time to explain and used a mirror instead of the scope, he said it gave him a panoramic view where the scope is better at specific views. I have no idea how he stuck that thing back in my throat without me gagging or throwing up, but he did.
This is a relief, almost like a vacation. It is the first time that Denise has had dry eyes in days. So we breathe a sign of relief for now. A biopsy is scheduled where he can take multiple samples. I asked for St Mary's because the lady that comes into the room and prays with and for you puts me at ease more. I think all hospitals should have this. I like UT but I don't think they do that there.
I have had good doctors, save one. Panella, Rathfoot, and Green I would recommend to anybody no matter how this turns out. Behind the scenes though is one that has been a blessing, Kim. This lady is probably the smartest person I have met and if she ever decides to open an office I will be there begging for her to take me.
So for now, we wait and take more prednisone and diflucan, plus the other junk. I think that makes me a total of about 11 pills. Most say not to take on an empty stomach, but after I take all that I'm pretty full, lol.
This is a relief, almost like a vacation. It is the first time that Denise has had dry eyes in days. So we breathe a sign of relief for now. A biopsy is scheduled where he can take multiple samples. I asked for St Mary's because the lady that comes into the room and prays with and for you puts me at ease more. I think all hospitals should have this. I like UT but I don't think they do that there.
I have had good doctors, save one. Panella, Rathfoot, and Green I would recommend to anybody no matter how this turns out. Behind the scenes though is one that has been a blessing, Kim. This lady is probably the smartest person I have met and if she ever decides to open an office I will be there begging for her to take me.
So for now, we wait and take more prednisone and diflucan, plus the other junk. I think that makes me a total of about 11 pills. Most say not to take on an empty stomach, but after I take all that I'm pretty full, lol.
Thursday, August 12, 2010
08-12-2010
Tomorrow we go back to Rathfoot for a scope. I'm assuming that he will set a date for another biopsy... we will see. It has been a food of emotions, a mixture too. So far I remain opposed to any surgery that will take the quality of life from me. I intended on putting up something that has the things I have taken, but Denise is fast asleep. Her eyes are puffy and she has felt the weight of this, so I will not wake her.
Saliva: During the radiation and chemo I used Biotene for the lack of saliva. There are some other products but they just didn't quite work for me, have no idea why. It comes in a spray which I liked. A liquid which I wasn't crazy about. Toothpaste which I also wasn't crazy about. The stuff tastes like crap, lol. But it did not burn, as some of the others did. I also ran two humidifiers in my room, I still run one.
Sickness: I was prescribed Marinol, which is a pill that is medical marijuana. This was for sickness from the Chemo. The Phenergan stopped some of the sickness for a while, bt it couldn't stop it all. The radiation also made me sick. Before they prescribed it though I bought a Vaporizer and some marijuana. This is well worth looking into. I really didn't care what law says this is bad, it got me through it. I destroyed what was left after I made it through the radiation and chemo. But it helps.
Pain: They kept me on a Morphine patch eventually along with 10mg Endocets for break through pain. Once again, Marijuana will help with the pain too. It also helps with depression. This illegal herb is just that, a herb. Those that have known me all my life knows that I never really cared for pot. This stuff is like anything else. It can be abused or used. It is not an evil weed. I changed my perspective on this stuff real fast. I later read that cooking it in certain foods helps. Problem with that is it can get stuck in the throat. Smoking it causes as much pain as it cures so a Vaporizer is the trick. You don't have to do it until you are stupidly high, just until the pain level and sickness leaves.
I drank Ensure to keep my weight up, but it burnt like Hell. Anything with any Sodium does. I'll go back and edit when I think of more stuff. I loved how the Nutritionist kept on pushing fruit juice. News Flash: Anything with fruit hurts. It still does. Carbonated drinks hurt. Just do water and maybe some tea, but watch the tea, it is a diuretic and you don't need that. Still, tea has a smooth effect.
Now on this here and now. I will wait and see what is what. I do know that something is impeding my airways, it has been for a while now. It could be an infection, it could be the cancer. If it is the cancer I will ask about a treatment I saw from France using medical grade baking soda. The doctor was fired when he was caught but it was well documented by the hospital he was working at. He obtained 100% cure. In this country though I doubt that it would be done.
I have wondered when this will end. Now it appears that it will end, just not that way I wanted. If it is a false positive reading then I will continue with spread out updates. If this is not and it is the cancer then I will continue to post until I am unable. So far those who have followed have seen me fight and attempt to be cured, if a cure isn't feasible then you will see what it is like to slowly die with this. Either way, I fight. I've too much stuff left to get done.
Saliva: During the radiation and chemo I used Biotene for the lack of saliva. There are some other products but they just didn't quite work for me, have no idea why. It comes in a spray which I liked. A liquid which I wasn't crazy about. Toothpaste which I also wasn't crazy about. The stuff tastes like crap, lol. But it did not burn, as some of the others did. I also ran two humidifiers in my room, I still run one.
Sickness: I was prescribed Marinol, which is a pill that is medical marijuana. This was for sickness from the Chemo. The Phenergan stopped some of the sickness for a while, bt it couldn't stop it all. The radiation also made me sick. Before they prescribed it though I bought a Vaporizer and some marijuana. This is well worth looking into. I really didn't care what law says this is bad, it got me through it. I destroyed what was left after I made it through the radiation and chemo. But it helps.
Pain: They kept me on a Morphine patch eventually along with 10mg Endocets for break through pain. Once again, Marijuana will help with the pain too. It also helps with depression. This illegal herb is just that, a herb. Those that have known me all my life knows that I never really cared for pot. This stuff is like anything else. It can be abused or used. It is not an evil weed. I changed my perspective on this stuff real fast. I later read that cooking it in certain foods helps. Problem with that is it can get stuck in the throat. Smoking it causes as much pain as it cures so a Vaporizer is the trick. You don't have to do it until you are stupidly high, just until the pain level and sickness leaves.
I drank Ensure to keep my weight up, but it burnt like Hell. Anything with any Sodium does. I'll go back and edit when I think of more stuff. I loved how the Nutritionist kept on pushing fruit juice. News Flash: Anything with fruit hurts. It still does. Carbonated drinks hurt. Just do water and maybe some tea, but watch the tea, it is a diuretic and you don't need that. Still, tea has a smooth effect.
Now on this here and now. I will wait and see what is what. I do know that something is impeding my airways, it has been for a while now. It could be an infection, it could be the cancer. If it is the cancer I will ask about a treatment I saw from France using medical grade baking soda. The doctor was fired when he was caught but it was well documented by the hospital he was working at. He obtained 100% cure. In this country though I doubt that it would be done.
I have wondered when this will end. Now it appears that it will end, just not that way I wanted. If it is a false positive reading then I will continue with spread out updates. If this is not and it is the cancer then I will continue to post until I am unable. So far those who have followed have seen me fight and attempt to be cured, if a cure isn't feasible then you will see what it is like to slowly die with this. Either way, I fight. I've too much stuff left to get done.
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