The extra Morphine afforded me some extra sleep last night but today HBOT was hard to do again. I'm not sure why but I keep thinking the Tea from Hardees. Tea has it's ups and downs but over the months I have drank so much water that I long for something with some kind of flavor and carbonated drinks and OJ aren't the answer.
Tonight though I don't need anything extra for pain, all day it has went no higher than level 2. I know there is swelling inside though, the hissing sound is back in my left ear. That means I am swelled up enough that pressure is being placed on the nerve. It is a loud hissing sound, so loud the first time I heard it I thought we had punctured a tire.
I bragged on the Non Hodgkin's Lymphoma a bit too soon, itssss baccckkkk, lol. (From a movie). My feet and ankles plus a new patch on my knee. The knee ain't so bad but the ankle is painful and the feet override the neuropathy. How can that be? Numb yet painful. It is however a pain that I need nothing for as for 5 years now it has been there most of the time. We can get use to the strangest things, if indeed I am use to it.
I think I've a cold now that hopefully will not blossom into anything more than that. My voice is back to where it was and the little chucks of whatever that hard stuff is comes up. I can swallow decent still but I have to get it back out of my nose, talk about a weird feeling. It is when it goes that way that I think is the hardest because obliviously it can't stay there and dislodging it is hard to do without making it head down the airway. Of all the ways for it to lodge that is the hardest to get loose.
I attempted to get some garden work or even something, anything, done outside but it just didn't happen... too hot. I did however manage to spend money, lol. I did listen to something on the radio that I will place a link to. This one is unusual for me to do. The real message starts a bit after the 3 minute mark and boy did it strike a nerve. Listen to this message... especially if you are going through a hardship. It will resonate with you. It is at : http://www.davidjeremiah.org/site/radio_player.aspx?id=169
Friday, July 16, 2010
Thursday, July 15, 2010
07-14-2010
It has been a not so good day today. I got to feeling a little bad in HBOT again today. The Colonel got very sick, but he wanted to stay.
I laid around today and only briefly went outside. I did eventually pick a bushel of Turkey Crawl Beans. I am not impressed with what I got. Many of those will be shellies so they will be used for next year's crop, if we do.
I also stayed, but I passed out from time to dime. The left ear is developing a hisss sound. My bones hurt today like they do in the fall. That could be the Lymes tick aftermath though. No fevel, no cough now. The choking has eturned along with strabge sounds. Tumor or just hasn't had enough time yet.
I laid around today and only briefly went outside. I did eventually pick a bushel of Turkey Crawl Beans. I am not impressed with what I got. Many of those will be shellies so they will be used for next year's crop, if we do.
I also stayed, but I passed out from time to dime. The left ear is developing a hisss sound. My bones hurt today like they do in the fall. That could be the Lymes tick aftermath though. No fevel, no cough now. The choking has eturned along with strabge sounds. Tumor or just hasn't had enough time yet.
Tuesday, July 13, 2010
7-13-2010
HBOT went well today but we lost the new guy until he can be checked out. Still no Colonel... tomorrow perhaps. I got a little nauseous today but it slowly wet away towards the end of the session, no more Polish sausage and Tea, lol.
After we came back I actually didn't do much of anything. It rained again today, thank God. Too late for the green beans but there is still time for the rest of the garden. I've played on the web today and enjoyed going back to ConCen and learning. I am tired but not as bad, especially when one considers I didn't sleep much last night. I'd say maybe 3 hours all together, but not at one time.
Tomorrow I have to get Megan's stuff straightened out. Paperwork, yuk.
Tonight my throat hurts but I've managed it until close to bedtime when I took a Lortab to deaden it. I discovered Sunday that by adding a 4th pill for the neuropathy it helped dramatically by accident. I couldn't remember if I had taken the second dose so I took another, later I remembered both doses. The loss of balance is just too much in intensity for it to be worth it. I can chose between pain and walking in pain, or little pain and not being able to walk. I chose the walking with more pain one.
I've had a lot of body aches and arthritis pain. It is like fall is coming. Both shoulders, my knees, ankles, and back just ache and the shoulders are freezing into place. I'm not sure if this is where these headaches are coming from, it could be all the politicians on TV, lol. The Lymes disease left arthritis but it usually ain't that bad. Old injuries from UPS are by far the worse. Still, except for the changing of seasons, it usually don't hurt as bad.
After we came back I actually didn't do much of anything. It rained again today, thank God. Too late for the green beans but there is still time for the rest of the garden. I've played on the web today and enjoyed going back to ConCen and learning. I am tired but not as bad, especially when one considers I didn't sleep much last night. I'd say maybe 3 hours all together, but not at one time.
Tomorrow I have to get Megan's stuff straightened out. Paperwork, yuk.
Tonight my throat hurts but I've managed it until close to bedtime when I took a Lortab to deaden it. I discovered Sunday that by adding a 4th pill for the neuropathy it helped dramatically by accident. I couldn't remember if I had taken the second dose so I took another, later I remembered both doses. The loss of balance is just too much in intensity for it to be worth it. I can chose between pain and walking in pain, or little pain and not being able to walk. I chose the walking with more pain one.
I've had a lot of body aches and arthritis pain. It is like fall is coming. Both shoulders, my knees, ankles, and back just ache and the shoulders are freezing into place. I'm not sure if this is where these headaches are coming from, it could be all the politicians on TV, lol. The Lymes disease left arthritis but it usually ain't that bad. Old injuries from UPS are by far the worse. Still, except for the changing of seasons, it usually don't hurt as bad.
Monday, July 12, 2010
7-12-2010
My posting are spacing out a bit as I hopefully get better. I still battle with the neuropathy day to day. I start out ok but by the end of each day I am back to bad. For whatever reason I stay tired, more so than usual. I am back to just going out, almost like passing out. The chemo brain fog thing seems to be increasing. God how I hate that.
The growth my fingernails experienced has stopped. Not sure what that means if anything. The ridges where the stopped growth during chemo show out now.
Since I have went down to a 12mg patch I hurt like Hell at times in the left side of my throat. Funny, the tumor was on the right side. I have began once again using the stomach pills prescribed (name escapes me) but it is sort of working. The time I got sick and threw up in HBOT must have been just dumb timing and a bug.
The HBOT team gave me a 25.oo Shoney's gift certificate for my birthday. They shouldn't have but it was very nice of them. The doc has had shoulder surgery and so we pray for his speedy recovery. We got a new guy in today that has had throat cancer last year. He had neck surgery and 25 radiation treatments but no chemo. He is having teeth pulled from his radiation 2 years ago and needs the Hyperbaric Oxygen treatments before and after. The Colonel hasn't returned yet.
The growth my fingernails experienced has stopped. Not sure what that means if anything. The ridges where the stopped growth during chemo show out now.
Since I have went down to a 12mg patch I hurt like Hell at times in the left side of my throat. Funny, the tumor was on the right side. I have began once again using the stomach pills prescribed (name escapes me) but it is sort of working. The time I got sick and threw up in HBOT must have been just dumb timing and a bug.
The HBOT team gave me a 25.oo Shoney's gift certificate for my birthday. They shouldn't have but it was very nice of them. The doc has had shoulder surgery and so we pray for his speedy recovery. We got a new guy in today that has had throat cancer last year. He had neck surgery and 25 radiation treatments but no chemo. He is having teeth pulled from his radiation 2 years ago and needs the Hyperbaric Oxygen treatments before and after. The Colonel hasn't returned yet.
Thursday, July 8, 2010
7-8-2010
http://www.youtube.com/watch?v=w4QM_RNfk4M or
Well I made it to 50. It sure didn't look like it was going to happen, lol. I started out with HBOT which went ok today. I had some ear trouble which was unusual. Good movie though. Charlie bought me lunch for my birthday.
We came home and I picked the cucumbers, divided them out and delivered them and later picked tomatoes and gave them out too. I played with the metal detector that Denise & Megan got me, man this thing is cool. It is complicated though. We ate birthday cake, all of my girls and grandkids were here. Denise bought me an Iron Man cake and said I was Iron Man after what all I have went through. If I am then the credit belongs to God and those around me and those who have prayed for me.
No blood in the bowels today so maybe it was just a fluke.
Today I am 50 years old and God has blessed me with the company of great family, friends, and medical people. There is nothing else one could ask for.
Well I made it to 50. It sure didn't look like it was going to happen, lol. I started out with HBOT which went ok today. I had some ear trouble which was unusual. Good movie though. Charlie bought me lunch for my birthday.
We came home and I picked the cucumbers, divided them out and delivered them and later picked tomatoes and gave them out too. I played with the metal detector that Denise & Megan got me, man this thing is cool. It is complicated though. We ate birthday cake, all of my girls and grandkids were here. Denise bought me an Iron Man cake and said I was Iron Man after what all I have went through. If I am then the credit belongs to God and those around me and those who have prayed for me.
No blood in the bowels today so maybe it was just a fluke.
Today I am 50 years old and God has blessed me with the company of great family, friends, and medical people. There is nothing else one could ask for.
Wednesday, July 7, 2010
7-7-10
HBOT went a bit shaky today. I got just a little nauseous. It may have been the Hardee's sausage biscuit but I am leaning towards the Tea. I may try water but if I do I will bring my own. I cannot stand chlorine and fluoride in my drinking water... actually any water. I'll do the Jelly Biscuit tomorrow. It can be my birthday breakfast, lol. Then again, I started the day having to take something for break through pain. It gets so old. Dr downing is worried about hurting for a long time after his upcoming shoulder surgery and if it hurts like mine did he is justified for doing so. Throat cancer and the treatments are however times ten that pain. I smiled and said welcome to my world. I feel as though I have lived in Hell for almost a year just from this and the shoulder still rages itself. Thank God it isn't the real Hell for it never ends. One day this will end and I will be better, either here or there... no matter.
The heat was bad again and about all I done was to water the plants, gather cucumbers and tomatoes and distribute them. I come in then. I read and played on the web, ok, I read on the web, lol. I also ordered Garlic since ours didn't do well. We will plant some of ours but we need more. I went back online to ConCen to visit my friends, more like, extended family. Rather than watch the horse and pony TV show news I read it, and that is one of the places I go, plus the people are great.
I am still passing blood through my bowels, bright red blood. I haven't a clue why nor do I really want to know. I see too many doctors already.
We got a letter from National Geographic in New Zealand thanking us for the interview. They sent two, one for Denise and one for me. They said they will tell us when the show Beyond and back will air and when we will be on it. Thank you Janice Finn for the lovely letter and the opportunity and honor to share our story. Thanks also to the crew that done the work on it.
If I awake tomorrow I will have made it to 50. That is 1/2 a century old! No wonder I'm tired, lol.
The heat was bad again and about all I done was to water the plants, gather cucumbers and tomatoes and distribute them. I come in then. I read and played on the web, ok, I read on the web, lol. I also ordered Garlic since ours didn't do well. We will plant some of ours but we need more. I went back online to ConCen to visit my friends, more like, extended family. Rather than watch the horse and pony TV show news I read it, and that is one of the places I go, plus the people are great.
I am still passing blood through my bowels, bright red blood. I haven't a clue why nor do I really want to know. I see too many doctors already.
We got a letter from National Geographic in New Zealand thanking us for the interview. They sent two, one for Denise and one for me. They said they will tell us when the show Beyond and back will air and when we will be on it. Thank you Janice Finn for the lovely letter and the opportunity and honor to share our story. Thanks also to the crew that done the work on it.
If I awake tomorrow I will have made it to 50. That is 1/2 a century old! No wonder I'm tired, lol.
Tuesday, July 6, 2010
07-06-2010
Today I went back to HBOT. The Colonel wasn't there again, he is still ill. We got a new person in today, his foot exploded. He is a diabetic. HBOT went well, a bit long but then again they had to go over what to do with the new guy. Funny, it is now second nature to me, all the things we do each day. Popping the ears, wearing the hoods, placing the cushions, the water... it is all too familiar. downing was in rare form again today, Gary set him off again. When people talk at me and get in my personal space I thank God that Lewis Byrd trained me to stand there and take it. Picture the Marine Sargent in the movie "Full Metal Jacket". Applicable in that condition but not this one. Perhaps that is why Jesus said "Physician Heal Thyself".
My hair is still curly and has grow slower than I'd like but it is growing, I still don't need a haircut. Denise still hates my beard, lol. My fingernails and toenails are slowly growing the rings out of them. I am told that Chemo even stops your nail growth and that is what caused it. My skin is back dark again but I still have to wear sunblock on my neck plus a big hat.
The neuropathy is an anybody's guess as to how bad it hurts and when it hurts... but it is for sure it will. Usually it in later in the day when it gets bad but occasionally it starts out that way. I would imagine that another dose added each day would help with the pain but it also kills my balance even more. The current level of pain is tolerable until it gets wound up and the balance lost I can compromise for as far as walking. I did discover that I cannot stand for too long.
The energy level after HBOT is exhilarating most days but short lived. Until this oppressive heat set in I was able to get some things done. In the heat though I cannot breathe, so I am confined to only short burst outside. Most of the people I know who have had throat or mouth radiation say the same thing. I still hit these walls, we all hit them only this is a hard wall and the second wind never comes.
My strength is picking up some, actually quite well. Unfortunately so is my weight. While I have grown a garden I really don't like anything except the green beans and melons, everything else is like by everybody else... I just like growing one.
My voice still sounds like "The Godfather", lol, but it beats "Sling Blade". My throat still hurts, sometimes in a way I have to take something for breakout pain, sometimes not. The thing is though... sometimes not, something that wasn't just a few months ago. I have pains that my body send I would imagine from the Chemo or all the abuse this treatment has done but it isn't nothing that I can't live with.
Going to the beach always clears up my NHL and so that part is normal, thing is, it is clearer than ever before and staying clear. I am not sure but this HBOT could work and indeed seems to work on CTCL. Oxygen kills cancer so I see no reason why not.
I turned in my application for retirement to UPS/IBT to get it started. I hope I get back to where I was but somehow I doubt that will happen. we are 1 month away from having the scan run to see if I am clean and if my lymph nodes are clear.
My hair is still curly and has grow slower than I'd like but it is growing, I still don't need a haircut. Denise still hates my beard, lol. My fingernails and toenails are slowly growing the rings out of them. I am told that Chemo even stops your nail growth and that is what caused it. My skin is back dark again but I still have to wear sunblock on my neck plus a big hat.
The neuropathy is an anybody's guess as to how bad it hurts and when it hurts... but it is for sure it will. Usually it in later in the day when it gets bad but occasionally it starts out that way. I would imagine that another dose added each day would help with the pain but it also kills my balance even more. The current level of pain is tolerable until it gets wound up and the balance lost I can compromise for as far as walking. I did discover that I cannot stand for too long.
The energy level after HBOT is exhilarating most days but short lived. Until this oppressive heat set in I was able to get some things done. In the heat though I cannot breathe, so I am confined to only short burst outside. Most of the people I know who have had throat or mouth radiation say the same thing. I still hit these walls, we all hit them only this is a hard wall and the second wind never comes.
My strength is picking up some, actually quite well. Unfortunately so is my weight. While I have grown a garden I really don't like anything except the green beans and melons, everything else is like by everybody else... I just like growing one.
My voice still sounds like "The Godfather", lol, but it beats "Sling Blade". My throat still hurts, sometimes in a way I have to take something for breakout pain, sometimes not. The thing is though... sometimes not, something that wasn't just a few months ago. I have pains that my body send I would imagine from the Chemo or all the abuse this treatment has done but it isn't nothing that I can't live with.
Going to the beach always clears up my NHL and so that part is normal, thing is, it is clearer than ever before and staying clear. I am not sure but this HBOT could work and indeed seems to work on CTCL. Oxygen kills cancer so I see no reason why not.
I turned in my application for retirement to UPS/IBT to get it started. I hope I get back to where I was but somehow I doubt that will happen. we are 1 month away from having the scan run to see if I am clean and if my lymph nodes are clear.
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