A Blog I hope that I keep up that will put perspective on just what I have experienced and what you can expect, God forbid, you should get it. This Blog reads backwards from the most current to the beginning.
Saturday, August 7, 2010
Thursday, August 5, 2010
08-05-2010
A new doc today, she seems ok so far. Smart and complete and nice for a change. Thank you Kim. She ordered some more blood work which I got drawn today. You would think I would be use to needles by now, I feel like a Porcupine, a fat one too, 209lbs! I gotta quit this gain.
My voice is some better, at least improving now since I don't have the patches. I think I was doing a lot and getting away with it pain wise. I attempted to eat a Chili Pup yesterday, got 1/2 of it eaten and then tossed it out and tossed in some pain meds. I use to could eat them without any pain or at least little pain. Amazing what Morphine will allow one to do, lol. Tonight we had Spaghetti, no stomach pills either. can you say acid reflux? After a Loratab failed, I did end up taking for the first time some Morphine after a few hours. I will assume that diet isn't taught to nurses, lol.
Not much sleep again last night and today getting up early plus working a little in this ridiculous heat, I am exhausted. Still though, not sleepy. Thyroid? It chimed in at 4.6 (I think)
Annie got her test back today and she has this rare disease that is treatable but not curable. At 20 years old. People, have you been noticing the young kids sick these days with crap that isn't or wasn't heard of before? Have you read the obituaries lately? We are concerned with so much these days yet we don't pay attention to what really matters. No worries though, I'm not going to go off on a long rant but I do remember reading back some years ago that children today will not outlive their parents. Read that again. It does not say not live as long as, not out live them.
All this has once again gotten me out of my willingly ignorant state. We eat something that foreign third world countries won't even allow to their slaves, GM Foods. So do this for not me, not you, but for them. Google these few things separately: GM Food, Codex Alimentarius, vaccines. Now on the last one do that on http://www.DrMercola.com. For a better view of Codex look for the videos and by all means visit http://www.morphcity.com. There are reasons for all this sickness and death. There are reasons that everything is happening. For those who know God, the last site should be looked at close.
My voice is some better, at least improving now since I don't have the patches. I think I was doing a lot and getting away with it pain wise. I attempted to eat a Chili Pup yesterday, got 1/2 of it eaten and then tossed it out and tossed in some pain meds. I use to could eat them without any pain or at least little pain. Amazing what Morphine will allow one to do, lol. Tonight we had Spaghetti, no stomach pills either. can you say acid reflux? After a Loratab failed, I did end up taking for the first time some Morphine after a few hours. I will assume that diet isn't taught to nurses, lol.
Not much sleep again last night and today getting up early plus working a little in this ridiculous heat, I am exhausted. Still though, not sleepy. Thyroid? It chimed in at 4.6 (I think)
Annie got her test back today and she has this rare disease that is treatable but not curable. At 20 years old. People, have you been noticing the young kids sick these days with crap that isn't or wasn't heard of before? Have you read the obituaries lately? We are concerned with so much these days yet we don't pay attention to what really matters. No worries though, I'm not going to go off on a long rant but I do remember reading back some years ago that children today will not outlive their parents. Read that again. It does not say not live as long as, not out live them.
All this has once again gotten me out of my willingly ignorant state. We eat something that foreign third world countries won't even allow to their slaves, GM Foods. So do this for not me, not you, but for them. Google these few things separately: GM Food, Codex Alimentarius, vaccines. Now on the last one do that on http://www.DrMercola.com. For a better view of Codex look for the videos and by all means visit http://www.morphcity.com. There are reasons for all this sickness and death. There are reasons that everything is happening. For those who know God, the last site should be looked at close.
Tuesday, August 3, 2010
08-04-2010
It's after 12pm and I'm still awake despite taking a sleeping pill. I'm worn out but not sleepy. Strange. It was hot today so I stayed in. The heat makes it hard to breathe these days. Part of the fatigue maybe be where I have ended the Morphine patches. I hate to admit it but apparently my body had become addicted to it. Though I've not used the Loratabs like I should have, taking them regularly for the first few days, it seems to be easing off a bit. The first 2 days are the hardest. I have Morphine left but I dare not touch it.
Not that I'm into pain but really this is better. I know now that there was no way to have endured the pain without it, it is better when the pain level drops to feel the pain. It limits how much I talk, what I drink and eat, and how I swallow. Maybe this will make the healing go better since I feel the pain from things I shouldn't be doing immediately. Still, tonight my throat feels like it's closing inside... but that's every night.
Soon I will have the Cat Scan and it worries me. I pray that all this has not been for nothing. I have seen and lived Hell on Earth for a long time now. It goes through my mind all the time what I have seen and relate it to what I have felt. I wonder what happened to the lady who had mouth cancer and radiation had disfigured her. How the lady crying in the men's bathroom was doing or the lady in the wheelchair that was scared and calling out to everybody. I see the faces of those in the chemo hut and radiation waiting area and wonder where they are now and how they are doing. They have all lived Hell on Earth too. I pray they are well and enjoying life now.
When people meet that have never had cancer and are told someone had or has cancer they talk, but never in depth. When people who have or had cancer meet we go into depth as to what kind, where, what kind of therapy or medicine... there are no strangers. There is a connection, perhaps it is the hellish period that connects us, perhaps it is that they too know they were not alone. I have yet to meet an Atheist who has cancer. Maybe it is because we have known or learned that we never walk alone, unless we so chose. This is not a walk to be done alone. Between the fear, pain, sorrow, hate, depression, loss of pride, loss of independence, humiliation, being bullied, and all that goes along with this... we connect with another who knows this.
Not that I'm into pain but really this is better. I know now that there was no way to have endured the pain without it, it is better when the pain level drops to feel the pain. It limits how much I talk, what I drink and eat, and how I swallow. Maybe this will make the healing go better since I feel the pain from things I shouldn't be doing immediately. Still, tonight my throat feels like it's closing inside... but that's every night.
Soon I will have the Cat Scan and it worries me. I pray that all this has not been for nothing. I have seen and lived Hell on Earth for a long time now. It goes through my mind all the time what I have seen and relate it to what I have felt. I wonder what happened to the lady who had mouth cancer and radiation had disfigured her. How the lady crying in the men's bathroom was doing or the lady in the wheelchair that was scared and calling out to everybody. I see the faces of those in the chemo hut and radiation waiting area and wonder where they are now and how they are doing. They have all lived Hell on Earth too. I pray they are well and enjoying life now.
When people meet that have never had cancer and are told someone had or has cancer they talk, but never in depth. When people who have or had cancer meet we go into depth as to what kind, where, what kind of therapy or medicine... there are no strangers. There is a connection, perhaps it is the hellish period that connects us, perhaps it is that they too know they were not alone. I have yet to meet an Atheist who has cancer. Maybe it is because we have known or learned that we never walk alone, unless we so chose. This is not a walk to be done alone. Between the fear, pain, sorrow, hate, depression, loss of pride, loss of independence, humiliation, being bullied, and all that goes along with this... we connect with another who knows this.
Monday, August 2, 2010
08-02-2010
After spending yesterday mostly sleeping, I stayed awake all last night, still I'm not sleepy. We got the blood work back on my Thyroid and it is gone. That was one of the known causalities of war. Now I have to find a doctor to go to for that. I'm open to suggestions. (Hint Kim).
The neuropathy is still as it was and the hissing sound is still in my ears. The time finally draws nigh to see if it is all gone. Oh yea, I also get to have a sleep study done. Fun, Fun, Fun.
The one good thing though is that there are no more pain patches, just pills and I'm not doing much of them.
The neuropathy is still as it was and the hissing sound is still in my ears. The time finally draws nigh to see if it is all gone. Oh yea, I also get to have a sleep study done. Fun, Fun, Fun.
The one good thing though is that there are no more pain patches, just pills and I'm not doing much of them.
Friday, July 30, 2010
07-30-2010
It's almost 4am and I woke up. Denise had to put me to be last night, not sure what went wrong. I was typing an email to Sally when things started spinning and I became totally disoriented. I got back up, intending to send the email, I am still not sure if I sent it or what I typed. That came out of nowhere and has to be a first. I had been hurting on the right side of my head earlier that night about the lower temple area. Right now my face is still numb. I didn't really do much yesterday so I wonder what was that? There is still a slight pain there, it feels like I got hit and it is sore. Even my gums are numb. My computer is exactly where I left it with the email going and all the windows I was watching open. Usually when the fatigue spells come I have time to react, this whatever it was I had no warning and no time to react, it just came. I hope that is a singular event. Maybe just too much TV, I had watched a few shows the last couple of days, lol. the pain is growing gain in intensity while I type this so I think I will lay back down.
Tuesday, July 27, 2010
7-27-2010
Well the appointment with Rathfoot went ok. I am done HBOT but he said I may need it again before this thing is done. I expressed what had happened there and if I did need it, try the single chamber. Something strange happened there. But I'm glad it is over. I will miss it though and highly recommend Hyperbaric Oxygen Therapy, it works.
The cartilage in my throat is healing, slowly, but healing. My larynx is now visible and moves one way, it just needs to move the other too. I asked about the hissing sounds and if they were related to the swelling. Nope, chemo, another perk to using that. It isn't all the time but a great deal of time when TV, people, radio, or some noise is on it starts. It sounds just like letting the air out of a tire and your head is right at the valve stem. No pain, just noise. The other noise I can't describe to you. To replace the HBOT he prescribed me another pill to take. I now take 10 pills 1st thing every morning, 2 mid day, and I think 5 at night, plus my vitamins and herbs.
I had another black out type spell coming home, the reason I don't drive much or far. I didn't get anything done today from the fatigue.
Charlie got to come home after getting 2 stints. St Mary's done an excellent job and he is doing great.
I looked again at the boat i just bought yesterday, lol. I am finding out the hard way that material to restore a boat isn't as easy to find as cars are, neither is information on it.
So be another day...
The cartilage in my throat is healing, slowly, but healing. My larynx is now visible and moves one way, it just needs to move the other too. I asked about the hissing sounds and if they were related to the swelling. Nope, chemo, another perk to using that. It isn't all the time but a great deal of time when TV, people, radio, or some noise is on it starts. It sounds just like letting the air out of a tire and your head is right at the valve stem. No pain, just noise. The other noise I can't describe to you. To replace the HBOT he prescribed me another pill to take. I now take 10 pills 1st thing every morning, 2 mid day, and I think 5 at night, plus my vitamins and herbs.
I had another black out type spell coming home, the reason I don't drive much or far. I didn't get anything done today from the fatigue.
Charlie got to come home after getting 2 stints. St Mary's done an excellent job and he is doing great.
I looked again at the boat i just bought yesterday, lol. I am finding out the hard way that material to restore a boat isn't as easy to find as cars are, neither is information on it.
So be another day...
Monday, July 26, 2010
7-26-2010
Lord what a night, no sleep at all. Denise said it was the predisone, that I had took it too late. Saturday night I like to not have went to sleep, started in bed and woke up freezing but soaking wet on the couch about 7am. Personally I think small elves carried me in there and bathed me. Now here it is Monday and I wish they'd have knocked me out, lol. I believe that I sweated out a lot of the infection though, other than tired I feel pretty good.
I didn't go again to HBOT and I will not go until I know the infection is gone and I can clear my ears for the dive. I go to Dr Rathfoot tomorrow for a check up, man I hope my sinuses are clear, if not they will give you stuff that will. Stinks but not too bad. I got only two visits in last week. I am hoping that I am done with the treatment. It isn't bad but you never know what mood the doc will show up and that causes stress. I have a problem with people that start a sentence screams look you G.D. S.O.B., then it gets worse. Its like Dr Jekyll and Mr Hyde and the way I figured it so far is that he knows that the people there are at his mercy and I'm sure that God is keeping score, I know I am. That kind of stress placed can reverse or at least detract from the benefit. I should have been doing Vit C. I have read that your body uses more under stress. I guess the law of averages just caught up with me. Look at the excellent doctors I have had so far plus the ones that read this. The has to be a bad apple in the bunch somewhere, sometime. So I really can't complain, I have been blessed.
Its sad really that someone has to be that way. Like the ones before though, I have remained silent on here and at the hospital... but it is hard. It is a shame really, Hyperbaric Oxygen Therapy is such a great tool. One of the few "conventional medicines" I think shows greatness. I have faith in it. I have not only experienced what it can do but saw others benefit from it. Over the course I have remained silent on this about it, I had no other choice. Usually Chad or John dive and both are compassionate and caring. Credits to their profession. I actually don't see how caregivers keep a heart as much as they see, and some don't, but these do.
I am slowly starting back my herbs and vitamins now, being careful as I don't get choked on them. It is getting easier. I still plan if all goes well to restart all the herbs plus the one that I am sorta leary of, the B-17. A friend on CC turned me onto a website that is pretty good. There is a therapy there that bears looking into, I've read about it over the years on other sites. I plan to look it over. It is at http://doctoryourself.com. Not that I will not walk away from this care but add to it. I have had too many kin folk die of cancer after they thought it was gone, too many. If mine is gone, I will still go through for prevention.
I didn't go again to HBOT and I will not go until I know the infection is gone and I can clear my ears for the dive. I go to Dr Rathfoot tomorrow for a check up, man I hope my sinuses are clear, if not they will give you stuff that will. Stinks but not too bad. I got only two visits in last week. I am hoping that I am done with the treatment. It isn't bad but you never know what mood the doc will show up and that causes stress. I have a problem with people that start a sentence screams look you G.D. S.O.B., then it gets worse. Its like Dr Jekyll and Mr Hyde and the way I figured it so far is that he knows that the people there are at his mercy and I'm sure that God is keeping score, I know I am. That kind of stress placed can reverse or at least detract from the benefit. I should have been doing Vit C. I have read that your body uses more under stress. I guess the law of averages just caught up with me. Look at the excellent doctors I have had so far plus the ones that read this. The has to be a bad apple in the bunch somewhere, sometime. So I really can't complain, I have been blessed.
Its sad really that someone has to be that way. Like the ones before though, I have remained silent on here and at the hospital... but it is hard. It is a shame really, Hyperbaric Oxygen Therapy is such a great tool. One of the few "conventional medicines" I think shows greatness. I have faith in it. I have not only experienced what it can do but saw others benefit from it. Over the course I have remained silent on this about it, I had no other choice. Usually Chad or John dive and both are compassionate and caring. Credits to their profession. I actually don't see how caregivers keep a heart as much as they see, and some don't, but these do.
I am slowly starting back my herbs and vitamins now, being careful as I don't get choked on them. It is getting easier. I still plan if all goes well to restart all the herbs plus the one that I am sorta leary of, the B-17. A friend on CC turned me onto a website that is pretty good. There is a therapy there that bears looking into, I've read about it over the years on other sites. I plan to look it over. It is at http://doctoryourself.com. Not that I will not walk away from this care but add to it. I have had too many kin folk die of cancer after they thought it was gone, too many. If mine is gone, I will still go through for prevention.
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