07-30-2010

It's almost 4am and I woke up. Denise had to put me to be last night, not sure what went wrong. I was typing an email to Sally when things started spinning and I became totally disoriented. I got back up, intending to send the email, I am still not sure if I sent it or what I typed. That came out of nowhere and has to be a first. I had been hurting on the right side of my head earlier that night about the lower temple area. Right now my face is still numb. I didn't really do much yesterday so I wonder what was that? There is still a slight pain there, it feels like I got hit and it is sore. Even my gums are numb. My computer is exactly where I left it with the email going and all the windows I was watching open. Usually when the fatigue spells come I have time to react, this whatever it was I had no warning and no time to react, it just came. I hope that is a singular event. Maybe just too much TV, I had watched a few shows the last couple of days, lol. the pain is growing gain in intensity while I type this so I think I will lay back down.

7-27-2010

Well the appointment with Rathfoot went ok. I am done HBOT but he said I may need it again before this thing is done. I expressed what had happened there and if I did need it, try the single chamber. Something strange happened there. But I'm glad it is over. I will miss it though and highly recommend Hyperbaric Oxygen Therapy, it works.

The cartilage in my throat is healing, slowly, but healing. My larynx is now visible and moves one way, it just needs to move the other too. I asked about the hissing sounds and if they were related to the swelling. Nope, chemo, another perk to using that. It isn't all the time but a great deal of time when TV, people, radio, or some noise is on it starts. It sounds just like letting the air out of a tire and your head is right at the valve stem. No pain, just noise. The other noise I can't describe to you. To replace the HBOT he prescribed me another pill to take. I now take 10 pills 1st thing every morning, 2 mid day, and I think 5 at night, plus my vitamins and herbs.

I had another black out type spell coming home, the reason I don't drive much or far. I didn't get anything done today from the fatigue.

Charlie got to come home after getting 2 stints. St Mary's done an excellent job and he is doing great.

I looked again at the boat i just bought yesterday, lol. I am finding out the hard way that material to restore a boat isn't as easy to find as cars are, neither is information on it.

So be another day...

7-26-2010

Lord what a night, no sleep at all. Denise said it was the predisone, that I had took it too late. Saturday night I like to not have went to sleep, started in bed and woke up freezing but soaking wet on the couch about 7am. Personally I think small elves carried me in there and bathed me. Now here it is Monday and I wish they'd have knocked me out, lol. I believe that I sweated out a lot of the infection though, other than tired I feel pretty good.

I didn't go again to HBOT and I will not go until I know the infection is gone and I can clear my ears for the dive. I go to Dr Rathfoot tomorrow for a check up, man I hope my sinuses are clear, if not they will give you stuff that will. Stinks but not too bad. I got only two visits in last week. I am hoping that I am done with the treatment. It isn't bad but you never know what mood the doc will show up and that causes stress. I have a problem with people that start a sentence screams look you G.D. S.O.B., then it gets worse. Its like Dr Jekyll and Mr Hyde and the way I figured it so far is that he knows that the people there are at his mercy and I'm sure that God is keeping score, I know I am. That kind of stress placed can reverse or at least detract from the benefit. I should have been doing Vit C. I have read that your body uses more under stress. I guess the law of averages just caught up with me. Look at the excellent doctors I have had so far plus the ones that read this. The has to be a bad apple in the bunch somewhere, sometime. So I really can't complain, I have been blessed.


Its sad really that someone has to be that way. Like the ones before though, I have remained silent on here and at the hospital... but it is hard. It is a shame really, Hyperbaric Oxygen Therapy is such a great tool. One of the few "conventional medicines" I think shows greatness. I have faith in it. I have not only experienced what it can do but saw others benefit from it. Over the course I have remained silent on this about it, I had no other choice. Usually Chad or John dive and both are compassionate and caring. Credits to their profession. I actually don't see how caregivers keep a heart as much as they see, and some don't, but these do.

I am slowly starting back my herbs and vitamins now, being careful as I don't get choked on them. It is getting easier. I still plan if all goes well to restart all the herbs plus the one that I am sorta leary of, the B-17. A friend on CC turned me onto a website that is pretty good. There is a therapy there that bears looking into, I've read about it over the years on other sites. I plan to look it over. It is at http://doctoryourself.com. Not that I will not walk away from this care but add to it. I have had too many kin folk die of cancer after they thought it was gone, too many. If mine is gone, I will still go through for prevention.

7-23-2010

It has been a long day, a painful one. I did finally get the oil changed in the truck and the cucumbers and some tomatoes picked. Rather than taking them to everybody I had them come and get it. I did get the chance to browse the web and chat with my friends at ConCen.

I should be down to one of the last few patches and so I am taking the advice of my friend Kim. I will wear these last 2 patches an extended day each and follow-up with pills for a few days then my system should be weaned. There is a lot of pain that shows, more than I thought was there. Not that I'm into pain but before I ate and swallowed whatever and whenever with occasional break through pain, thing is, it masked far too much pain. That allowed me to eat and do whatever and that ain't a good thing. It isn't the mountains that wears one down, it is the hills. I knew when I done really bad but not when I done bad... I do now.

My neck is hurting on the outside more than the inside after a few minutes unprotected in the sun. The sun has become my enemy with this and yet is my friend with the Non Hodgkin's Lymphoma. Speaking of which, the ones that read this please remember my good friend Sally tonight who is hurting and say a prayer for her. She is one of the sweetest, smartest, strongest people I have had the honor of calling friend. If one reads on CTCL it looks like a walk in the park, but in reality it is far, far from that. I love on one board when someone says they are hurting and the doctors say they are not. It is by the Grace from God that the roles aren't changed.

I finally got some meds for my cold today that Dr Rathfoot called in. It has taken from last Friday til now, but at least I have them. I've suffered some with this cold but this is life, I've seen a whole lot worse times and I'm sure I will again. I have an appointment with him next week and I pray that he will say good job. I grow tired of this battle.

07-22-2010

I still have some kind of bug I caught off mom so I haven't been to the HBOT treatments since Wed. I feel like crap, just drained on strength, head stopped up and ache all over. It reminds me a little of Chemo but not the bad days, the good ones, that depresses me a lot. So I have once again been inside the house doing nothing and sleeping on and off. Since last Friday we have tried to get a hold of Rathfoot but to no success. This is the first time he has dropped the ball. Tomorrow will be a week and still nothing as this stuff gets worse and trys to go on down in my respiratory track.

I am so over being helpless in so many areas, I would love my independence back. Next month will make a year for this to be going on. I have had enough already, enough for 2 lifetimes.

07-21-2010

I stayed home today due to an infection in my sinuses and ears, both were stopped up and I felt like crap. Tomorrow I will stay home again just to make sure this stuff leaves even though I feel a little better tonight.

My right shoulder is acting up, I think the tear I did 20 years ago has torn again, either that or I've injured it again. I will wait until all this calms down and then maybe go for a shot into the shoulder and see if that helps.

My neuropathy gave me a fit today even though I kept off my feet and kept them elevated... strange. My throat seemed a little less painful today after I woke up, but then again I didn't talk much today. It still isn't too bad. I think if the saliva glands would start to work and this sinus thing would quit, and the reflux stop I might have a chance to have a voice.

August 9 is still in the back of my mind though. I look forward to it yet at the same time I can wait. If they give me the all clear I'm buying a boat, a cheap fishing boat... and I mean cheap, lol.

For My Family and Friends