I went this morning and had an EKG and was checked out, which was ok. It is faxed along with clearance for the upcoming surgery next week. I can't remember how long I was out or how long I was down. Maybe they will tell me. Just so long as I don't wake up with an extra hole.
I rode Denise then Megan on the bike Sunday, it was so much fun. I rode it today briefly. Just in case, I really need to get some stuff done outside, actual work done. Some pain today, but not too bad. Neuropathy though has been bad.
Pretty snazzy look now eh? I changed the skin on the Blogger.
Tuesday, August 17, 2010
Friday, August 13, 2010
08-13-2010
An appointment with Dr Rathfoot turned out much better today. While he isn't sure if cancer is in there, he says that he believes that it is just inflammation from the radiation. He said that my cartilage was lighting up from all the damage the radiation has done. He said that it looked like water balloons in my throat from the swelling. He mostly talked with Denise and I listened but I got lost. I knew that Denise could interpret to me what was said. Rathfoot took his time to explain and used a mirror instead of the scope, he said it gave him a panoramic view where the scope is better at specific views. I have no idea how he stuck that thing back in my throat without me gagging or throwing up, but he did.
This is a relief, almost like a vacation. It is the first time that Denise has had dry eyes in days. So we breathe a sign of relief for now. A biopsy is scheduled where he can take multiple samples. I asked for St Mary's because the lady that comes into the room and prays with and for you puts me at ease more. I think all hospitals should have this. I like UT but I don't think they do that there.
I have had good doctors, save one. Panella, Rathfoot, and Green I would recommend to anybody no matter how this turns out. Behind the scenes though is one that has been a blessing, Kim. This lady is probably the smartest person I have met and if she ever decides to open an office I will be there begging for her to take me.
So for now, we wait and take more prednisone and diflucan, plus the other junk. I think that makes me a total of about 11 pills. Most say not to take on an empty stomach, but after I take all that I'm pretty full, lol.
This is a relief, almost like a vacation. It is the first time that Denise has had dry eyes in days. So we breathe a sign of relief for now. A biopsy is scheduled where he can take multiple samples. I asked for St Mary's because the lady that comes into the room and prays with and for you puts me at ease more. I think all hospitals should have this. I like UT but I don't think they do that there.
I have had good doctors, save one. Panella, Rathfoot, and Green I would recommend to anybody no matter how this turns out. Behind the scenes though is one that has been a blessing, Kim. This lady is probably the smartest person I have met and if she ever decides to open an office I will be there begging for her to take me.
So for now, we wait and take more prednisone and diflucan, plus the other junk. I think that makes me a total of about 11 pills. Most say not to take on an empty stomach, but after I take all that I'm pretty full, lol.
Thursday, August 12, 2010
08-12-2010
Tomorrow we go back to Rathfoot for a scope. I'm assuming that he will set a date for another biopsy... we will see. It has been a food of emotions, a mixture too. So far I remain opposed to any surgery that will take the quality of life from me. I intended on putting up something that has the things I have taken, but Denise is fast asleep. Her eyes are puffy and she has felt the weight of this, so I will not wake her.
Saliva: During the radiation and chemo I used Biotene for the lack of saliva. There are some other products but they just didn't quite work for me, have no idea why. It comes in a spray which I liked. A liquid which I wasn't crazy about. Toothpaste which I also wasn't crazy about. The stuff tastes like crap, lol. But it did not burn, as some of the others did. I also ran two humidifiers in my room, I still run one.
Sickness: I was prescribed Marinol, which is a pill that is medical marijuana. This was for sickness from the Chemo. The Phenergan stopped some of the sickness for a while, bt it couldn't stop it all. The radiation also made me sick. Before they prescribed it though I bought a Vaporizer and some marijuana. This is well worth looking into. I really didn't care what law says this is bad, it got me through it. I destroyed what was left after I made it through the radiation and chemo. But it helps.
Pain: They kept me on a Morphine patch eventually along with 10mg Endocets for break through pain. Once again, Marijuana will help with the pain too. It also helps with depression. This illegal herb is just that, a herb. Those that have known me all my life knows that I never really cared for pot. This stuff is like anything else. It can be abused or used. It is not an evil weed. I changed my perspective on this stuff real fast. I later read that cooking it in certain foods helps. Problem with that is it can get stuck in the throat. Smoking it causes as much pain as it cures so a Vaporizer is the trick. You don't have to do it until you are stupidly high, just until the pain level and sickness leaves.
I drank Ensure to keep my weight up, but it burnt like Hell. Anything with any Sodium does. I'll go back and edit when I think of more stuff. I loved how the Nutritionist kept on pushing fruit juice. News Flash: Anything with fruit hurts. It still does. Carbonated drinks hurt. Just do water and maybe some tea, but watch the tea, it is a diuretic and you don't need that. Still, tea has a smooth effect.
Now on this here and now. I will wait and see what is what. I do know that something is impeding my airways, it has been for a while now. It could be an infection, it could be the cancer. If it is the cancer I will ask about a treatment I saw from France using medical grade baking soda. The doctor was fired when he was caught but it was well documented by the hospital he was working at. He obtained 100% cure. In this country though I doubt that it would be done.
I have wondered when this will end. Now it appears that it will end, just not that way I wanted. If it is a false positive reading then I will continue with spread out updates. If this is not and it is the cancer then I will continue to post until I am unable. So far those who have followed have seen me fight and attempt to be cured, if a cure isn't feasible then you will see what it is like to slowly die with this. Either way, I fight. I've too much stuff left to get done.
Saliva: During the radiation and chemo I used Biotene for the lack of saliva. There are some other products but they just didn't quite work for me, have no idea why. It comes in a spray which I liked. A liquid which I wasn't crazy about. Toothpaste which I also wasn't crazy about. The stuff tastes like crap, lol. But it did not burn, as some of the others did. I also ran two humidifiers in my room, I still run one.
Sickness: I was prescribed Marinol, which is a pill that is medical marijuana. This was for sickness from the Chemo. The Phenergan stopped some of the sickness for a while, bt it couldn't stop it all. The radiation also made me sick. Before they prescribed it though I bought a Vaporizer and some marijuana. This is well worth looking into. I really didn't care what law says this is bad, it got me through it. I destroyed what was left after I made it through the radiation and chemo. But it helps.
Pain: They kept me on a Morphine patch eventually along with 10mg Endocets for break through pain. Once again, Marijuana will help with the pain too. It also helps with depression. This illegal herb is just that, a herb. Those that have known me all my life knows that I never really cared for pot. This stuff is like anything else. It can be abused or used. It is not an evil weed. I changed my perspective on this stuff real fast. I later read that cooking it in certain foods helps. Problem with that is it can get stuck in the throat. Smoking it causes as much pain as it cures so a Vaporizer is the trick. You don't have to do it until you are stupidly high, just until the pain level and sickness leaves.
I drank Ensure to keep my weight up, but it burnt like Hell. Anything with any Sodium does. I'll go back and edit when I think of more stuff. I loved how the Nutritionist kept on pushing fruit juice. News Flash: Anything with fruit hurts. It still does. Carbonated drinks hurt. Just do water and maybe some tea, but watch the tea, it is a diuretic and you don't need that. Still, tea has a smooth effect.
Now on this here and now. I will wait and see what is what. I do know that something is impeding my airways, it has been for a while now. It could be an infection, it could be the cancer. If it is the cancer I will ask about a treatment I saw from France using medical grade baking soda. The doctor was fired when he was caught but it was well documented by the hospital he was working at. He obtained 100% cure. In this country though I doubt that it would be done.
I have wondered when this will end. Now it appears that it will end, just not that way I wanted. If it is a false positive reading then I will continue with spread out updates. If this is not and it is the cancer then I will continue to post until I am unable. So far those who have followed have seen me fight and attempt to be cured, if a cure isn't feasible then you will see what it is like to slowly die with this. Either way, I fight. I've too much stuff left to get done.
Wednesday, August 11, 2010
08-11-2010
We just got back from Panella who went over the scan. He was called out of the room before he could go over it with us. The report said that the disease has progressed. It shows something like 4.7mm, much larger than the 2.5mm I started with. Panella said I had a lot of damage inside from the radiation and that it might be what it is. He also went over removing the larynx, which I declined. He wants Rathfoot to take a better look inside once again, which I will let him do.
Denise and I had a chat om the way back, she cried. Sometimes the answer is no. I asked her as I do the ones that know me to not let this shake their faith in God, He knows best. We pray and He hears us, so please pray. But if the answer He gives is no, while we don't always understand why, He does know best. I also asked her to not ask me to fight anymore if cancer is still here, I really don't think I can.
Denise and I had a chat om the way back, she cried. Sometimes the answer is no. I asked her as I do the ones that know me to not let this shake their faith in God, He knows best. We pray and He hears us, so please pray. But if the answer He gives is no, while we don't always understand why, He does know best. I also asked her to not ask me to fight anymore if cancer is still here, I really don't think I can.
Tuesday, August 10, 2010
08-10-2010
I've paid today for yesterday's activity. I'm getting use to that. Today my neuropathy has been a little worse for wear and my throat has been painful, but not so bad as to take anything until tonight. I'd like to sleep as good as i did last night. usually I get up in the morning and still, my mouth is covered, if I'm lucky, with a thick coating. I think this may be where the saliva glands aren't working but maybe a bit. Once I get that crap brushed off and get my throat clear of that and blood, I'm good to go. Warm water helps get that done faster. At night I drink some tea because it helps to coat the mouth and throat. Biotene will but wears off quickly.
Tomorrow I will get the results from the scan that was done Monday. That was the first scan done since the scan that revealed it was in the lymph node. It is one of those things where you want to know and you don't want to know. This should be my last doctor's visit until the end of the month when I see that radiation doctor again.
The doctor I went to called and my levels are still within range even though the TSH is a bit high. She wants to wait until all are in line to start meds. In 6 weeks I need the blood work repeated on my thyroid. Thank you Kim for the referral. She is great.
Tomorrow I will get the results from the scan that was done Monday. That was the first scan done since the scan that revealed it was in the lymph node. It is one of those things where you want to know and you don't want to know. This should be my last doctor's visit until the end of the month when I see that radiation doctor again.
The doctor I went to called and my levels are still within range even though the TSH is a bit high. She wants to wait until all are in line to start meds. In 6 weeks I need the blood work repeated on my thyroid. Thank you Kim for the referral. She is great.
Saturday, August 7, 2010
08-07-10
I think I'm backing up these days. This is day three and I got 2 hours of sleep last night. That means that within the last 3 days I have had about 6 hours of sleep. There is a lot of pain lately and swelling too. It has been almost a week now since my Rip Van Winkle episode of sleeping all day and still my tongue and mouth are sore. That extended sleep, while everybody said I needed it caused a lot of pain. Without being awake to constantly take in fluids my mouth and tongue dried out. I have a rumble and I've had it now for some time in my chest, maybe it is in my throat, who knows. I can make some of the weirdest noises when i breathe once again.
I stay tired the last few days and haven't gotten much done. In a word, damn. Me and Megan yesterday though, did have fun. We shot between 50-100 rounds of ammo back in the woods. Megan is pretty good at shooting. William came back thinking something was up with his 44. Megan shot it and it kicked like a mule, lol. Well, it is almost 5am. Lets see what today brings.
3:39pm:
Me and Matt went to the Newport Bargain House to get some cat food. He had never been and I kept telling them about you can get good deals on food wholesale there a lot of times. I use it to feed the little kittens that their mother died. How they ended up in one of the carports I have no idea. Not that I'm a cat person per say but I hate to see anything go hungry. We hit a few yard sales coming back and at one he had some old cars, really cool. He showed them to us. Our little trip went almost 3 hours, lol. We both came back with some tools and I got a cute small oil lantern. I figured that I would finish repairing the roof over the tool room then wire the new starter switch in the boat... not gonna happen though. While we were looking at the old cars I kept needing to spit and started spitting up blood. My throat is killing me. All I've eaten is a sandwich so I know it's not that. I feel run down all the sudden. I will have to wait until I gather enough energy to unload the tools. I will not mention it to Denise or the doctors and see if it quits. It must be placing pressure on the left ear nerve because it feels like a poker is sticking into my ear drum. I took a Lortab, it isn't helping much but it at least lessens the pain. I really don't want to do the Morphine again so I'm taking that option off the table. Makes me wonder when this will end. It has been over a year now and it is wearing me down physiologically.
I stay tired the last few days and haven't gotten much done. In a word, damn. Me and Megan yesterday though, did have fun. We shot between 50-100 rounds of ammo back in the woods. Megan is pretty good at shooting. William came back thinking something was up with his 44. Megan shot it and it kicked like a mule, lol. Well, it is almost 5am. Lets see what today brings.
3:39pm:
Me and Matt went to the Newport Bargain House to get some cat food. He had never been and I kept telling them about you can get good deals on food wholesale there a lot of times. I use it to feed the little kittens that their mother died. How they ended up in one of the carports I have no idea. Not that I'm a cat person per say but I hate to see anything go hungry. We hit a few yard sales coming back and at one he had some old cars, really cool. He showed them to us. Our little trip went almost 3 hours, lol. We both came back with some tools and I got a cute small oil lantern. I figured that I would finish repairing the roof over the tool room then wire the new starter switch in the boat... not gonna happen though. While we were looking at the old cars I kept needing to spit and started spitting up blood. My throat is killing me. All I've eaten is a sandwich so I know it's not that. I feel run down all the sudden. I will have to wait until I gather enough energy to unload the tools. I will not mention it to Denise or the doctors and see if it quits. It must be placing pressure on the left ear nerve because it feels like a poker is sticking into my ear drum. I took a Lortab, it isn't helping much but it at least lessens the pain. I really don't want to do the Morphine again so I'm taking that option off the table. Makes me wonder when this will end. It has been over a year now and it is wearing me down physiologically.
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